Really 😢

[weathervane]

I just got flowers from a neighbor up the street who noticed i was walking with a crutch, so .... why do I feel like crying ?? Im feeling a wee bit pathetic today.

[wsjkcj1]

Hi WV, that's so nice that your neighbor cares to take time out for you like that. How's your treatment going?

[weathervane in reply to wsjkcj1]

It was really nice of her as she is having alot of problems with peripheral neuropathy due to diabetes. Im having a bad day , I reduced the tramadol again on Sunday and having cramps and increased pain in my hip and down my leg . Its hard to be positive all the time so I suppose a low is bound to happen . Also feeling nauseous for some reason , maybe due to tablets. Any how , how are to keeping yourself today , i hope you are having a good one ?

[wsjkcj1 in reply to weathervane]

yes, it's hard to stay positive all the time. especially when you're in pain. How is your rash? Is it gone?

[weathervane]

The rash is gone now, it took over a week! Pain + itch would be the last straw!!

[Jewels94]

A little touch of kindness from someone does make us so emotional xx

[weathervane]

That is so right jewels ! Sometimes it is the little things that get to is . It would make everyone’s day a wee bit better if we could be kind to just one person . Does kindness bred kindness??

[helixhelix]

I feel like crying too! Random acts of kindness are so wonderful. My grandmother was hot on performing mitzvahs regularly, which I found tiresome as a child but now realise how valuable the concept is.

[weathervane in reply to helixhelix]

You are a soft after all helix 😀 can i ask you what is a mitzvah ? Its sounds very interesting.

[helixhelix in reply to weathervane]

Overall they are the Jewish Biblical commandments, but commonly a mitzvah is used quite generally to mean a good deed, and you are supposed to do that a lot, like every day. Well that's what my gran felt was necessary.

[weathervane in reply to helixhelix]

That is a wonderful commandment and something we could all follow, your Gran must have been a good person .

[helixhelix in reply to weathervane]

Good deeds did also include doing my homework, the washing up and cleaning my shoes, as well as being nice to neighbours. I think she reckoned that I wasn't at risk of coveting my neighbour's ox or murdering anyone (not committing murder or ox theft are good deeds) so created things she considered more appropriate.... a tough soul.

[weathervane in reply to helixhelix]

I never knew my grandparents, as they were gone before i was born, but they came from tough times as both sets of grandparents were from farms so I imagine they were hard workers , i know my parents were .

[NeonkittyUK]

Beautiful! Invite her for coffee and say thank you 💐☕️☕️

[weathervane]

You are right neon , though it would probably be just coffee as she is on a very strict diet as her diabetes is only getting under control 🌸

[Nicole2000]

WV, it goes to show that there’s still kind people out there. Nx

[weathervane]

I have always found that , i have a great belief in the kindness of people, my husband thinks im a bit too soft sometimes but I think you should look for goodness in people, maybe thats my rural upbringing 😀

[Gnarli]

I'm no good at accepting a kindness. It makes me want to cry too. Being helped off a bus by a lovely lady who had dreadfully disfigured joints from JIA had me in floods after.

J

[weathervane]

Its the kindness of strangers that really gets to you !

[Hidden in reply to weathervane]

I think the kindness of strangers is a wonderful thing. I remember being on a train shortly after my mum died and guess I must have told this much older woman opposite me ; I can't remember what was said but I will always remember the compassion and love in her eyes as she reached out and took hold of my hand and held it in hers. And yes ,it made me want to cry but was so needed.

[weathervane in reply to Hidden]

That is a very warm memory, it is wonderful that there was a stranger there to support you just when you needed it . Best wishes 💐

[Eiram50]

That’s lovely. It can be very touching to know that people notice and care x

[weathervane]

Its a very simple and easy thing to do , just asking how someone is and listening can make a difference, I know it does to me

[wsjkcj1]

Hi WV,

just checking in. How are things? any improvement?

[weathervane]

Thank so much for asking 😀 things are much the same with my back. Ive spoken to the rheumy as im due to have rituximab, i can have it after the wound is healed if i have the disc shaved or have the rituximab and then wait 4 months for the op . So i see the surgeon next Wednesday and see what can be done. I don’t think ive much choice as im fit for nothing at the moment ! How are you keeping yourself, are things any better at all with you . The beast from the East has arrived here and the snow started this morning, it is so cold!! Best wishes xx

[wsjkcj1]

I think I'd opt for the surgery first and then rituximab second to hopefully get some pain relief. I'm doing ok at the moment. feeling pretty good with only minor aches and pains. I have a follow up with Rheumy in the morning and she'll probably do annual blood work. I've been given a new diagnosis from my derm on my skin cancer issue though. It's called Gorlin syndrome or Nevoid basal-cell carcinoma syndrome. It's an inherited condition involving defects within multiple body systems such as the skin, nervous system, eyes, endocrine system, and bones. I'm especially interested in how it effects the endocrine system because that is what SS does also. I'm anxious to talk to her to see if she knows of any connection between the two. Derm wants me to start a chemo drug called Erivedge. I'm not very excited about that but if it helps control the skin cancer and I end up with less surgeries I'll be happy.

I hate to say our weather here is beautiful after hearing about yours. LOL nearly 70 degrees although next week there will be ice and snow probably!

[weathervane]

You have alot on your plate at the moment,I hope the chemo treatment will not be too severe and is successful in treating the skin cancer. It will be interesting to hear what the rheumatologist thinks about your condition, will it mean more investigations ? Do let me know how you get on tomorrow . Best wishes 🤞🏻🤞🏻Xx