Worse joint pain after Humira

[Bluebells01]

Evening,

I’ve had two Humira injections so far and due my third on Monday. Was feeling very positive when I started taking it but since then I’ve felt so much worse with joint pain in more areas than before, tiredness still the same but swelling now 24 hours instead of mostly morning and evening. Frustrating to say the least. I know that it can take 12 weeks to start working but has anyone else had the same problem? Feeling worse before you start feeling better?

[Astral]

I had the worst flare ever after starting humira but my rheumy nurse told me it's quite normal to flare after starting a new drug. It all settled down for me and humira worked well so I hope it's the same for you.

[Bluebells01]

Thank you astral that’s good to know. I was hoping to feel bionic within a couple of weeks but I guess everybody is different!

[Vixen2]

Hi Bluebells01.

I’ve just seen your post about Humira. (Even though you wrote it 2 yrs ago!) I was wondering how you’re getting on now? I’m in the same position. Literally. (Lying on my back). It’s Christmas day & i can hardly walk. I’ve had rheumatoid arthritis since i was 21. (I’m 48 now). I’ve had awful flare ups throughout the years. Plus i have 2 serious eye conditions. Iritis & glaucoma. I’ve been on infliximab for about 15 yrs. But it’s stopped working. My vision was decreasing. (Alot). I’ve had quite a few steroid eye injections. 2 cataracts removed & steroid implants injected into my eyes. (Bloody painful). I was told the infliximab has stopped working. So a few weeks ago, my rheumatologist put me on humira. I’ve been having the most awful, awful flare up in my back & feet for nearly 2 months. Absolute agony. Like i’ve said. I can hardly walk. Awful spasms in my back. Feels like it’s going to lock, forever! Had 2 humira injections. But i feel it’s made me worse. I’ve just read that it can take up to 3 months for it to get into your system. I feel depressed to think i might be in this much pain for that long. It’s already been 2 months with this horrible flare up. Are you still on the humira? & has it helped you?