Sister started on hydroxychloroquine

[Brizzle29]

Hi, my sister saw her RA Doc, and now have her on hydroxychloroquine with her mx, does this work well together? She is not happy with all these different meds and the possible side effects. I wish I could get her this group, but she is still trying to adjust to now having RA on top of the other auto immune issues. Thanks

[Hessie5]

Hi Brizzle - I was on mtx and hydroxy. I found the hydroxy helpful with the pain in all honesty. But I have now changed to biologics as the inflammation was still active in my right foot, even though I was in little pain and the odd flares. I do attribute my pain to my own fault as just didn’t want to take the meds, I am just hard headed. But please do take meds as you are only hurting yourself. Remember we are all different when it comes to lifestyle and meds. Tell your sister not to stress or worry, it only aggravates. On a trying day it’s my body’s way of saying, take it easy! Try and remain hopeful, yes you have up days and the odd testing day but not many, we are but human. 😌

[Brizzle29 in reply to Hessie5]

She is slowly coming to understand what she needs to do, thanks it is nice hearing from others

[helixhelix]

Yes I take both (and Sulpha too) and have done so with no problems and zero side effects for 7 years now. All the research now points to getting the best outcome if you treat the disease aggressively from the start. That has been true for me, as have been in remission for last 5 years more or less, and have very few erosions.

[Nuttyshirlz]

Hi

I’m on methotrexate and sulfasalazine took me over six months to join group I’m still trying to get use to side affects too.give her time to get her head round it all I’m sure she might in time but at least she’s got you to support her Hun 🙂

[Brizzle29 in reply to Nuttyshirlz]

Thank you, hopefully she will join soon!

[loppyloo12]

I been on hydro for 4 years but it never took well with me on the mex so tell her be careful if she struggles get her ask doc for lufudimid xx

[Kathies]

I was on mtx and hydroxy for over for 4 years and it kept the ra at bay very well, but eventually I just couldn't tolerate the mtx. Now I'm on leflunomide and hydroxy and the pain is almost non existent and I've lost weight, a 'side effect' 😀. All these drugs are powerful and toxic, I wouldn't take them if I could bear the pain with an occasional pain killer, but ra is a vicious disease and like the previous post it has to be dealt with aggressively early on to avoid potential joint damage. 10 years on I lead an active happy life and feel positive about future changes and drugs. My mum had ra without the benefits of these amazing drugs, we all need to be thankful they are available to us. I hope your sister can join this group, it is very helpful.

[Beviejon1 in reply to Kathies]

I have been this RA journey for 25 years.I feel the same as you.I hate taking the drugs but am so grateful for them.I too feel they have helped me have a good quality life.

[Brizzle29 in reply to Beviejon1]

Thanks, slowly starting to see some improvement

[Brizzle29 in reply to Kathies]

So far she is doing well on the meds, but it has only been 6 weeks, but her pain seems a little better. Thanks for your response