New Medicine : Hi everyone, Hope all of you are feeling... - NRAS

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New Medicine

Olmettig profile image
4 Replies

Hi everyone,

Hope all of you are feeling better as the days and weeks go by.

I have been extremely sore and in pain the last few weeks more than anything, I am thinking it’s the cold weather. I could barely lift my arms and my hands are really weak and sore. The doctor gave me a steroid shot in the shoulder so I could move, today it’s a little better.

The Doctor took me off of Methotrexate because I was not feeling well and my liver counts were high. We waited a month til it came down and now she wants me to try Leflunmide. Can anyone share with me, if they are on this? I am taking this for my RA and I have been on Cymbalta for my Fibromyalgia which I think takes the edge off.

Prayers to all of you during this Holiday Season!

❤️❤️

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Olmettig profile image
Olmettig
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4 Replies
rabbits65 profile image
rabbits65

I think definitely the cold damp weather has an increased affect on our bodies and makes our pains treble. . I really hate this time of year and roll on the Springtime please.. I hope your new Meds work for you.

oldtimer profile image
oldtimer

If you put leflunomide into the search box you should find lots of comments by people taking it.

nomoreheels profile image
nomoreheels

I took it for a year though it was stopped last month but many are on on leflunomide successfully. I took it with methotrexate but unfortunately it didn't do anything for my RD but did give me a rare side effect. If you check the Search NRAS box top right corner you'll find lots of posts on it.

This cold & damp weather does nothing for me either, I think we're all affected to some degree. I also had another steroid injection in my shoulder at my last Rheumy appointment & it's worked a treat so I hope the same for you.

Danna profile image
Danna

Dear Olmettig These medications did nothing for me except gave me Nodules on my lungs, gave me lung disease, I was put on Leflunmide and 7 months later I had 3 different skin cancers in 2015. in Aug 2016 I was put on Rituxan. On Feb 22, 2017 I was diagnosed with Metastasis Melanoma to my left lung. I would say if cancer runs in your family DO NOT TAKE ANY OF THESE. In Aug 2017 I was put on Opdivo. It has attacked my RA so bad that I am having to use braces to strength my wrist to hold a cup of coffee. I can't lift my arms to get dressed. I can tell you this I am NED. We are going to try the rituxan again and stay on the Opdivo at the same time. Hoping we can keep the cancer away and get the RA in control. I know what crippling pain is like and I know what being sick is like on these meds it feels like a no win situation, but don't give up and do your home work. Good luck Danna

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