Any and all advice, wisdom, or comments are accepted. Because of the shortness of breath which occurred after only 6 weeks on the mtx the Dr has switched me to the Leflunomide. I can read the printed info but want the real life info from you guys. I am still new and have been at this for 8 weeks. I'm learning but a lot of you have helped so much just starting out I thought I would reach out to you again. Any info on this change is greatly appreciated!!!
Thanks
i found Lefunomide took away my appetite completely....so do watch that. I lost a lot of weight before I realised.
Hope it works for you, many on this site have been on it very successfully for years.
Thanks for responding I will pay attn to that. Bless you
I do hope the Leflunomide works for you ......it's a shame you couldn't tolerate Mtx...I was lucky & took it for 7 yrs & was 90% painfree...but all good things come to an end, now on RTX & so far so good.
I've been taking it for three years no problems. I take a t night and it does take a long wile to work (12-14 weeks) at first side effect was only it hurt worse then that pain went and I was in remission. Great med ! x
Hi, I have been taking it got 3 years. Side effects for me were weight loss, easy bruising. Did bother my stomach at first, I learned to eat a meal before taking it. Wishing you the same good luck on it
Wow great news!!! So glad for you! Maybe it will do the same for me! Thank you so much.
Wow what a positive! Needed that! I am thinking about the night thing...thanks for inspiring me.
Thanks for sharing your experience with me. Best to you this holiday season. I will post updates.
I stopped leflunomide 6 weeks ago after taking it just short of a year. Unfortunately I had a rare reaction which I queried with my GP who thought it worth checking out & then my Rheumy who wasn't convinced but as LEF wasn't doing an awful lot was happy for me to stop it & see. It caused neuropathy, specifically peripheral neuropathy & carpal tunnel symptoms confirmed by a Nerve Conduction Study (NCS). My hands were affected enough that my Occupational Therapist gave me a pair of splints which did ease them somewhat. As I say I stopped LEF about 6 weeks ago & the symptoms have eased, the CT symptoms virtually gone I can manage without the splints. I had repeat NCS on Tuesday plus electromyogram (EMG) done by the same Neurologist who confirmed improvement. I'm telling you this so you're aware as LEF takes a long while to leave the system once it's stopped, although there is washout procedure that can be given if you need to get it out of your system quickly. I remain on MTX & low dose steroids & see where I go from here at my next review, unless I start to go downhill.
I am praying for you. I know the rare side effect thing as I had one on the MTX. Shortness of breath wasn't pleasant. Took me off it right away. Thanks for the insight!
