For Lucy: Dear Lucy I just want to say that I've always... - NRAS

NRAS

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For Lucy

StormySeas profile image
7 Replies

Dear Lucy

I just want to say that I've always enjoyed reading your posts and found them informative and positive.

It's actually because of you that I'm trying to get back into exercise, not at your level, but what you've achieved gives me hope that I can get some degree of my own fitness back.

I love cycling too and I was so happy when I read your posts about getting back on your bike. It made me think I could do it too.

I'm really sorry you've had unpleasant responses about your posts. What's great about this board is the breadth of experience on it and it's worse for your absence.

I'm so sorry you've left, but I wish you well. If it's true you've had unpleasant messages I hope you can ignore them and be pleased that for some people with RD at least, you've made a big difference.

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StormySeas profile image
StormySeas
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7 Replies
Mandy8175 profile image
Mandy8175

Well said and I second that motion! Come back to us Lucy, we need your success stories to keep reminding us there is hope, and that there is a sunny day ahead!

Beverley-NRAS profile image
Beverley-NRAS

If anyone does have an unpleasant experience via a private message please let us admins know. It is not acceptable to abuse people through the private messaging system. Take a screen shot of the offending message and send it us and we can take appropriate action.

Beverley

(NRAS Helpline)

StormySeas profile image
StormySeas in reply to Beverley-NRAS

The very sad thing is that whatever that person was feeling would in fact have made a great topic for a post because it is really hard to read about someone's happiness when you yourself can hardly move.

Dealing with the illness and the feelings of failure and inadequacy when other people seem to responding well to treatment is hard. Not having access to biologics when you think you need them is unfair.

RA is a rotten miserable disease and we all need the space of this forum to share our experiences without repercussion.

Beverley-NRAS profile image
Beverley-NRAS in reply to Beverley-NRAS

You can also report HU PMs via the report button in the message. Click the 3 little dots at the top of the message.

popsmith1874 profile image
popsmith1874

Well said we are all here to help each other and give support xxx

Neonkittie17 profile image
Neonkittie17 in reply to popsmith1874

Hopefully Beverley's message will deter the offending person. Never any need for unkind and bullying behaviour.

Eiram50 profile image
Eiram50

Well said! I too second this!!

Come back Lucy. You are missed and actually, your optimism and positivity are needed.

Look forward to hearing from you. X

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