I have asked about my breathing in the last few weeks. Nothing shows up as abnormal on tests but they gave me an inhaler (doesn't really seem to help).
About 4-5 days ago when it was bugging me I took a deep breath in and it caused a weird buzzing tingling sensation in both hands. Only very briefly but it's been doing that ever since. Not every time. I can't decide if it's certain positions or what. It did it when I yawned.
I'm so over my body doing weird things. I almost called the rheumatologist today but then decided maybe it's too random. I'm not even sure it's connected to my shortness of breath feeling.
Anyone every have this happen??
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cheshcat
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I have this have had cat scan on lungs camera down my throat x rays you name it. Why wont they listen to me this has only happeneď since RA started!!!!! Is it RAor meds doing it. My throat also is sore painful and it feels like the flue all the time since starting humira my rheumywont have that it could be the meds!!!!!
Thisb......y disease ggood luck hppe u get a diagnosis llet me know please.
I used to get sore throats when I was taking methotrexate...always confined to the right side of my throat. Also had regular cold symptoms, which seems to have eased of late, I think that was/is RA related. Seems like strange things can happen when we have a disease, especially one that involves a messed up immune system. Always best to get new symptoms checked out. and you're not kidding when you call it a .....y disease either!!!
I do get funny buzzy feelings in my feet. Indescribable really, bit like my mobile phone when it vibrates! I haven’t linked it to breathing though. Just another joy of this ...disease.
Have you had nerve conduction tests done on your legs/feet? I have this sensation, I describe it as that & the vibration of a tuning fork. Mine was diagnosed as peripheral neuropathy, cause not determined but I've had to stop leflunomide as a precaution even though it's a rare side effect.
Mine is constant, worse on walking or if I have my feet up in the recliner & one of the dogs wags them. If it becomes a problem or more regular do mention it, your Rheumy or GP may wish to refer you to Neurology for investigations.
Oh my goodness...it wasn't just me then! I used to get this symptom until about 6 months ago. I did ask my Rheumy nurse about it but she hadn't a clue. Like you I used to spend ages trying to make it happen by way of trying to understand what was causing it. I came to the conclusion it must be a circulation/blood pressure effect as it seemed to happen immediately after a deep breath. It would be interesting to see if you could get this to happen whilst hooked up to a BP monitor...like when you have sitting/standing BP taken.
That sounds as though it's connected to a neurological issue. Mention it if you're seeing either your Rheumy or your nurse soon, they may wish to have studies done to determine what the cause is.
I must agree with linda 5502 it must be ra and the meds’ because now I am on three inhalers and be on oxygen up to sixteen hours per day. I manage to walk now but must take a small oxygen pack with me to breathe I have never had this in my life it only started after taking mex for fourteen months without anybody checking I was ok. I have posted a few times on this subject and I am sure it is down to the meds as they do tell you about side effects the choice is find a med that suits you trial and error or stay in pain. I hope your breathing improves and you find the med that is good for you also very sorry for this long reply but this side effect has hit me very hard and it would be nice if they could find a system that all rummys could follow good luck for the future
My whole RD experience started with bad flu, fatigue and extreme breathlessness even at rest, never had this in my life before- x ray and spirometry clear and then joint pain began. I am certain it is RA related tho rheumatology don't agree. This was before any drugs. Had recurrence on higher dose of Mtx and taken off it - my best week so far😄 I'm on lower dose now 12.5 mg+ 400 mg hydroxychloroquine daily now. Ventolin inhaler did nothing but GP gave me steroid inhaler clenil modulite, this really helped. It seems to go with flares to me? I get tingling, pins and needles too. Don't know if this is helpful and not GP. There seem to be a lot of posts about breathlessness on here.
I honestly went to bed thinking, no one has possibly had this weird thing. I am SO OVER my body doing weird things without my consent!!
I will call the rheumy today, I was almost embarrassed to call yesterday, even though I have diagnosed illness, it still feels on some level that I'm a hypochondriac. No one seems to care that I had zero symptoms until the day I got the "flu" and never got better. I just keep getting worse. I am SO over it (that was 4 years ago). I didn't even have anxiety 2 years into my illness. Ugh.
I really appreciate all the support of these boards, don't know what I'd do without them <3
My very first flare, I had weird sensations in my legs, it felt as if the blood couldn't circulate down my legs, especially in bed at night. I had to get up and walk around rubbing my legs which didn't help one bit, also my legs kept giving way and down I'd go, they never did get to bottom of it, told me I had a virus. Doc gave me amitriptylene, which did help a bit, (weird symptoms is my middle name lol) I've had loads. Hope you get it sorted out. X
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