Hurting in Ohio

[Julesb3]

Hello, I'm Julie and I'm 48 feeling like 88.

[Mary-intussuception]

X

[TxKelly]

I'm Kelly in Texas - and I know how you feel! I'm 51 going on 90

[Radiogirl in reply to TxKelly]

Hey Kelly, which part of Texas? I'm in Plano (suburb of Dallas.)

[TxKelly in reply to Radiogirl]

I work in Plano - live in Keller. Small world!

[Radiogirl in reply to TxKelly]

Wow! 😃 Yes, a small world, but you have a long commute for work. Is your rheumy's in Keller?

[TxKelly in reply to Radiogirl]

No my doc is in Plano. It's easier to see the doc closer to where I work than live. I miss less work time getting there and back. I work at JCP headquarters in Plano - do you? I'd be a really small world

[Radiogirl in reply to TxKelly]

I'm not working right now. For 6-7 years I was full time caregiver to my dad. We moved him in with us. He was 100% immobile and had late stage Alzheimer's. He passed away 3 years ago. Then I started helping take care of our first granddaughter.💓

My rheumy is in Allen, Dr. Lavery. It took me 3 months to get into him.

I'm having surgery next week, but maybe after I'm healed up a bit we could get together for coffee. I know there's a Starbucks in the Shops of Legacy. I think that is close to the JCP Corp headquarters, right? If you're up to it I could meet anywhere that is convenient in Plano.

[TxKelly in reply to Radiogirl]

Taking care of a parent is working! That must have been so tough.

I bet taking care of your granddaughter is fun. I don't have any yet.

What are you having surgery for (if you don't mind me asking)?

I'm not a coffee person - but I'd love to meet.

[Radiogirl in reply to TxKelly]

I'm having an Anterior Cervical Neck Fusion Surgery (C4-5 and C5-6) on the 26th. You name the place then! I'll look so forward to meeting you then, sometime soon. 🌸😊🌼

[Gnarli]

Hi Julie. If its any consolation, you don't look anywhere near 48 let alone 88.

[Hairdevine]

Hi Julie, from Ohio also !

Kelly

[ruth_p]

Hello and welcome 😊

[Zip1]

Hi

[Hidden]

Yes, totally understand. I overdid things yesterday and today I am 59 going upwards fast.

[nomoreheels]

Hiya Julie, welcome from the UK! Glad to see you're still able to do what we girls do best! 👗💄👜👠

[Lesley_1]

I am 58 in age, but my body and brain feel like 90.

I have less energy than my 88 year old Grandma did before she passed away.

[Julesb3 in reply to Lesley_1]

Is there anything that helps with energy? It's starting to effect my job 😢

[Mark_67 in reply to Julesb3]

When I had problems with energy levels I thought I needed more sleep. I was wrong; I needed more exercise. I slept much better and gradually my energy levels returned. It may not work for everyone but it's worth trying.

[Hairdevine in reply to Julesb3]

I started on a good multi vitamin and also a sublingual b12 vitamin. I really notice when I don't take them

[Lesley_1 in reply to Julesb3]

My Rheumatologist explained my blood tests to me this way. He said when the ESR and CRP are up, it affects red blood cells, iron, all the B vitamins and your body finds it harder to process what you need from your food.

He suggested a good Probiotic,Mega B multivitamins, Vitamin C, Magnesium, Vitamin E, Chromium, and selenium.

Over time I have added more, namely Ginseng and Gingko biloba.

He also said cut out all dairy, sugar and white flour as they are all inflammatory to the body. He said pot set yoghurts were ok.

I really struggle with that as I have a sweet tooth.

[Beviejon1]

I'm also from OH.I started this RA journey at 50.I know just how you feel.

[Julesb3]

Thank You everyone! Here's to keeping positive and pushing through! 👍🏼💜🙏🏼💪🏼💪🏼💪🏼

[Mandy8175 in reply to Julesb3]

I am 42 going on 90 in Kentucky! Where at in Ohio if you don't mind my asking?

[Julesb3 in reply to Mandy8175]

Hi Mandy! I'm up north on Lake Erie 😎

[Mandy8175 in reply to Julesb3]

I used to have relatives in Columbus that we visited a couple of times a year

[Lesley_1]

I am taking mega b's and my rheumatologist said on Tuesday that taking the Ginseng is really good along with all the other vitamins I buy.

[JuliaKB]

Hi Julie and all!! I'm Julia from Montana and I'm 58 and debating if I should say I feel like I'm 98 or feel like a newborn who needs to sleep 20/24 hours. My fatigue has reached an all time high. And we won't even start on the joint pain and shortness of breath from all the smoke.

I know it does get better, when I'm not flaring then I feel like I'm 38 and this disease doesn't control my life.

Here's to hope and remission!!!!

[Lesley_1 in reply to JuliaKB]

I have a large Homedics air filter cleaner in my bedroom. I can't have my bedroom window open as it's winter and people have log fires around here and our council is doing preventative burn offs in the lead up to bushfire season

[born2runck]

Hi Julie! I am also from OH. I am 47 and have had this disease for almost 2 years. I live in the Dayton area but I have family up your way.

[Sil01]

Same here . I try to take every day as a new day . I found that ginkgo bilova helps with my mind and energy . I push myself really hard to walk on the treadmill . I'm in pain but I know I can do it . We are strong !!!! We can do this! Stay strong my friend !

[Radiogirl]

Hi Julie! I'm Lori (Radiogirl) from Texas. I'm 56 feeling 80. Welcome to this great, supportive place!

[Julesb3 in reply to Radiogirl]

I see this!! 💜💜🙏🏼🙏🏼🙏🏼 Great place...nice meeting everyone and thanks for the welcome! Well, it's Friday night...Methotrexate day 👎🏼 I really do dread taking this medication....I will be sick for three days now 😱 Trying to stay positive & hoping I get used to this??? Do you ever get used to Methotrexate ?

[JEM95 in reply to Julesb3]

Yes, you do 😀 When I started on it I had horrible side effects. Over time my body has got used to it, tolerates it better now and it has given me some semblance of normal life again.

I inject now instead of pills - that helps a lot, plus I take folic acid (I call it frolic acid!) six days a week - that also helps.

It took months to really settle but it was so worth waiting for.

Keep positive! x

[Julesb3 in reply to JEM95]

Oh Thank You!!! I keep saying I will push through this and get used to it! Sooo glad to hear you are doing well!!!!! Xxx

[Lesley_1 in reply to Julesb3]

I try to plan my week so that I can have nothing planned day after methotrexate as I get so fatigued.

[nomoreheels]

Hiya Kelly. For your personal security it's not advisable to give out your private email, especially on an unlocked post where the world can see it. A post locked to community only will have a padlock beneath the title, this is somewhat better but we have the option of sending private messages, this is more secure if you want to share personal info, details here support.healthunlocked.com/...

[TxKelly in reply to nomoreheels]

Thanks

[nomoreheels in reply to TxKelly]

Do you know how to amend your reply to remove your email?

[Artsymom69]

I hear you. I am also 48 I too live in Ohio... and there are days when I just lay! ( sleep) and other days I golf, play tennis w hubby. Most times, between the two. But body hurts in so many places... so many issues! Don't know about u, but I'm hoping that the treatment I'm on that has started to take the inflammation away, will start to help with pain.. and continue w the inflammation. hope u can find some relief!