Previously I posted in the PMR section because I believe that is what I have. But of course, every rheumy I have seen says it's impossible... Because I'm 34.
Everything started about early to mid June, I had a bit of shoulder pain. After it persisted, I went to doc, said it was probably bursitis. Then a week later, I woke up to the most intense pain shooting from my shoulder to my hand (and I know pain; I have a 5 mm disc herniation in my lower back), the pain was unbearable. Went to GP and he referred me to physical medicine thinking I had a pinched nerve in my neck. Got an MRI scheduled. At this point, all I get is pain killers. Two days later, I'm feeling things in my knees, hips, butt, and IT bands. That's when GP referred me to a rheumatologist.
In the meantime, I became crippled. Going to bed was a nightmare, lying down would aggravate my shoulders and the whole process would begin, pain in my hands, and as the night progressed, I became more and more crippled. Every part of me was affected. And my neck and upper back felt like a got hit by a bus!! By morning, I couldn't move. Husband had to prop me up, give me pain pill and hold water bottle for me to sip. After a few hours, the pain and stiffness would lessen, but it was EVERYWHERE.... To make a long story a little less long...First rheumy gave me 5 mg Prednisone, as blood work was being done. Didn't seem to make much of a difference so after about a week, I stopped taking it. Whoa! Did I feel the difference then! So I got back on the 5 mg and it was an aha moment. I went from completely imobile and excruciating pain to "hey, let's go get something to eat out" in a matter of a few hours. When I saw rheumy again, he upped it to 20 mg of Prednisone, then 40 mg Prednisone for a few days. Upping the dose didn't make a huge difference. More blood work was conducted. Here I am 2 months later, he claims to have ruled out Lupus, Fibro, and other viruses. His conclusion is RA. Since then I have tapered Prednisone to 10 mg, feeling more pain, especially in my feet and hands, but manageable. I get a lot of achiness in many places, legs, trunk, chest, and feet constantly hurt, is this normal?
Also, my feet are constantly tingly and sometimes it crawls up my legs. Didn't really have too much of these sensations initially. I will be starting methotrexate (10mg/week) along with 1 folic acid pill per day. I am really nervous about it. I've read the scary side affects and people's experiences. I'm hoping since Prednisone seems to have treated me right.. Hopefully MXT can be okay with me to. Please, any suggestions at all? When to take it? Should I split the dose? Can I take Prednisone and MTX at the same time?
Any foods that helped you with the potential nausea? Or hair loss? I take hair supplements and assume I can continue to do so.
I feel really lost. I went from a happy, super active person to a complete 180...I went through a grievance period and have decided to stop comparing me now to me in the past, have set new expectation and have made it my determination to not give in to the sorrow that was enveloping me.... It was getting into a dark scary place!!! So now trying to be positive and hope I can be of encouragement and light to you all as well.