I'm on RTX & reading through the literature on Bio Similars it does say the medical practitioner has to have the. Consent of the patient before switching ....did that happen with you?
Were you asked if you agreed to change to what I presume is another Bio similar?
On my first infusion 18 months ag I did have a slight rash...nothing like as bad as your photos show....so I now ask exactly what is in my infusion every time. If I were told it's been changed I will refuse to have it. Might sound dramatic, but I couldn't cope with what you are going through.
Probably not, but have a look on the website for the NICE guidelines.
Or why don't you give the helpline a ring?
I'm sure they will have come across this question before.
I'm going to show the photo you posted when I next see my Rheumy nurse. I'm sure they read a lot about bad reactions, but I wonder how many they actually see?
There is no law but they have certainly acted against th guidelines.It may be though that your rights as a patient have been violated. Actually I would ask a lawyer, would be interesting to know since there will be a lot of these cases, and it certainly is not a thing to look lightly upon, the welfare of the patient is at stake. Sorry about your bad reaction and all the hassle it evidently has lead to. Good luck. Simba
You poor guy, how ghastly. I hope they've agreed to switch you back? I've heard that's possible in some areas. I once had Hives when on Enbrel and that was horrible but it was nowhere like as serious. Thanks for the warning. We never know who'll react badly and who'll be fine.
That looks awful. So sorry. I didn't know there were cheaper alternatives for the meds we take. What have you been given? I would demand that you are put back on the 'real' rituximab asap if that was working okay. Feel better soon. xo
Its only become available here in last few months but it is used successfully elsewhere I am told. I was told that all new patients will be given it instead of rituximab but I at least can refuse as already on rituximab. Even without getting a bad reaction like poor David I would be put off psychologically and that can actually risk it not working as well. Thank heavens I checked on here before Friday!
Wow. I'm On sulfrasazsline but never had any reactions luckily
Poor you
What about your blood pressure did it return to normal Did you get chest pains ?
Oh my god Dobsey that is horrendous poor you! Thank you so much for the heads up! Any idea what they call the alternative? Is it still rituximab but a different brand? I would speak to nras about your rights, like you say you do not know what's happening inside.
Truxima....although apparently they plan to market it under 4 different names to push up the use.
Do ask your rheumy whether he/she has submitted a yellow card report on this. You can also submit one as well as I think it's important that we report side effects for the safety of others. yellow card.mhra.gov.uk.
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