Hi has anyone experienced weight gain with Tocilizumab?
Tocilizumab: Hi has anyone experienced weight gain with... - NRAS
Tocilizumab
yes 2 stone i know it sounds a lot been on it for around 4 years and cant seem to shift so you are not alone x
3 stone, I know nothing shifts it at all! Hate this drug, had lots of serious infections 😔
i have tolerated reasonably well except for the weight but that is a pain are you on injections or infusions
I have been on Toxcilizumab for seven years and have gained over two stone. My condition is more controlled as ESR and CRP levels have dropped to normal. (From 95 & 300) Also no swelling of joints etc. So I think I just have to put up with weight gain as this treatment seems to be the only one that works.
I gain approximately 11 pounds the week following my Tocilizumab infusion. I have had to beg my Dr for Lasix to help with the fluid retention. I have my infusion, then take 10mg of Lasix (furosimide), and I find fluid retention goes away.
The Tocilizumab is great stuff though. My crp was 159 and dropped to less than 0.2 in 2 months. This is after 2 years of trying what seemed like every drug known to the doctors.
A little weight gain is not so bad as long as it does not affect your breathing and such. Myself with the fluid retention, it was causing me to have difficulty breathing and catching my breath while walking.
Once I started on the Lasix the breathing became easier.
Maybe ask your doctor for a trial of the Lasix. I do not take it everyday. I take either 5 or 10mg once a week to maintain fluid levels and weight levels.
Cheers and hope this helps.
Scott