Remicade : Hello...anyone taking this medication and if... - NRAS

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Remicade

Luv2shoppp profile image
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Hello...anyone taking this medication and if so please share your thoughts. Thanks!

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Luv2shoppp
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Entero profile image
Entero

Hi, I've had Remicade - or Infliximab as it's known in the UK numerous times. It's been really effective at inducing remission when I've had severe flares. It's not without side effects but they've been worth it for me. What else would you like to know?

Luv2shoppp profile image
Luv2shoppp in reply toEntero

Thank u! The side effects experienced... I'm leaving Enbrel after two years and moving on to Remicade next week.

Entero profile image
Entero in reply toLuv2shoppp

I'm afraid I'm not familiar with Enbril so can't offer a comparison. I've always had Infliximab over a period of several hours to reduce the chances of a reaction and to that same end I guess you know you're given a good dollop of antihistamine via IV beforehand? So you're pretty sleepy at the time. I've had small side effects like a rash on my hands or mild nausea but nothing much else at the time. I am however always pretty much wiped out for a few days afterwards - but then remember you usually have to be pretty unwell to have it so is its the drug in combination with the illness. I'm managing on Methotrexate at the moment and although like most of us I'd rather not take anything, Infliximab has worked wonders for me. Good luck 😊

Luv2shoppp profile image
Luv2shoppp in reply toEntero

Thanks for sharing Entero! That's helpful. Im right with you about wishing I didn't have to take any drugs at all.

Hobbits profile image
Hobbits in reply toEntero

Could you share what side effects you had on Remicade?

Hi, why don't you get in touch with our helpline who will be able to give you some information on this medication. You can contact them by phone on 0800 2987650 or by email at helpline@nras.org.uk

Hope this helps. Val, NRAS

Luv2shoppp profile image
Luv2shoppp in reply to

Thank you! Will do

JennyA123 profile image
JennyA123

Hi I did used embrel for a month after one month I had a allergic reaction and had to stop.. then I started remicaid it did worked well for 8 months after that time I had a allergic reaction... now I'm going to start something new. I hope that this help.

Luv2shoppp profile image
Luv2shoppp in reply toJennyA123

Thank you Jenny...I've had one infusion so far. What type of allergic reaction did you experience on Enbrel and Remicade?

Hobbits profile image
Hobbits

Hello, did you end up taking Remicade? Could you share your experience?

Remicade was suggested for me but I don't have to choose this specific biologic, they said I could take any of the biologics that treat both RA and Crohns. I'm looking to make an informed decision.

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