Methotrexate : Hi all can anyone tell me what your... - NRAS

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Methotrexate

Mcdive40 profile image
21 Replies

Hi all can anyone tell me what your liver function test is meant to be I'm on methotrexate but I'm not sure if my ATL test is to high at the moment it's 81

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Mcdive40
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21 Replies
Matilda7 profile image
Matilda7

You should also have been given the normal range and be assured that if your doctors were alarmed they would get in touch with you!

Mcdive40 profile image
Mcdive40 in reply toMatilda7

No she didn't give me the normal range she said its slightly high but I don't no what the range is

Matilda_1922 profile image
Matilda_1922 in reply toMcdive40

Normal is below 35

Mcdive40 profile image
Mcdive40 in reply toMatilda_1922

Is it well 81 is high then I had another test last week and still a bit high

Different labs can and do use different calculations from one another. At least in Canada they do. A high number from one lab can be safer than a low number from another lab. My advice to you is to find the safe range from the lab you use.

Also, just because one month your numbers are high, the next month they could lower. Doctors like to average you lab numbers over a period of time.

helixhelix profile image
helixhelix

My current lab gives under 50 as the range, so it does vary. Ask for a print out of your results as that should then show the range. One odd result is not normally a big issue, did the nurse suggest retesting or just to wait until the next regular test?

Mcdive40 profile image
Mcdive40 in reply tohelixhelix

Thank you for that the nurse said to retest so had another bloody test last week and still a bit high she said but I do have appointment for see consultant beginning of December

Paula-C profile image
Paula-C

My specalist nurse told me that beings we are on Mtx anything up to 70 is ok. Mine once rose to the dizzy heights of 267 had to stop drugs until I had two ok blood results. It went down straight away and Ihen had my Mtx dose lowered, never had a problem since.

Consultant told me that they don't get worried until it's in the 600's. xx

Mcdive40 profile image
Mcdive40 in reply toPaula-C

Do you get a print out of your blood results think I'm going to ask them to do that I want to keep an eye on them myself as well

Gigi71 profile image
Gigi71 in reply toMcdive40

Hi. Like Paula, I too have a Mtx monitoring booklet, I leave it a week and then ring the rheumy nurses helpline, they get back to me with the results to fill in. I did try adding my Gp to the blood form, so the surgery got a copy, bit hit an miss, the receptionist prints out a copy, when requested. Good luck.

Em13 profile image
Em13 in reply toPaula-C

600s?? And there is me worrying because mine has risen to 37! (Range given as should be less than 33.)

Paula-C profile image
Paula-C

I have my bloods done at the hospital. I have a Mtx monitoring booklet. When I go to get my bloods done I give it to the nurse and she then puts in the results from the previous test. x

Mcdive40 profile image
Mcdive40 in reply toPaula-C

Hi there

No they never gave me a book but I'm going to ask for a print out of all my blood results or a booklet because I would like to keep an eye on my own blood tests because they have been a bit high

melissa6140 profile image
melissa6140

mine kept going up a little every month after the third month the doctor took me off it. But I go to a place that goes by your income because I have no insurance and can't afford it. They have a website that has all your tests results and illnesses and appointments on line. But on the results the say what the test result was and what it should be so you can go on there and look its really nice. I think all doctors should do it so that you can look it up yourself and see what is going on.

Mcdive40 profile image
Mcdive40 in reply tomelissa6140

Oh don't you live in the U.K. Then because we have NHS here and no we don't anything like that where you can get it off a computer

cathie profile image
cathie in reply toMcdive40

I always try to remember to ask for a printout which here (Scotland). Gives the normal range and previous results too.

A word of caution if you're told to come off methotrexate try to argue for it to be gradual. They withdrew mine overnight and it was catastrophic. My current rheumy says it should have been done more cautiously. Good luck.

Mcdive40 profile image
Mcdive40 in reply tocathie

Thank you for that but I don't think the Methatrexate is working for me I still get all the pains

melissa6140 profile image
melissa6140 in reply toMcdive40

no I live in virginia but even here not all doctors have the computer log for you

Scottishlad profile image
Scottishlad

Not sure if this is the same test which l had repeated when it was just over 40 which was deemed to be a trigger. My rheumatology consultant spotted the re-test and wrote to my GP telling them not to worry unless it reached 80.

Mcdive40 profile image
Mcdive40 in reply toScottishlad

Yeah mine was 81 and I had to have another blood test right away and that one has only gone down a little bit got another test next week so should no more then

Joy_1 profile image
Joy_1

Like others have suggested, get a print out. It will give you the range for each test. On my print outs it says 0 - 55 iu/l is the normal range.

I have had a couple of higher readings over the last 4 years (ie since diagnosis). One was 99 one month then 33 the following month. The Consultant said "not to worry about the odd blip it is caused by the MTX. "

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