I have sero positive inflammatory arthtitis and have been on tocilizumab iv for 2 years now. Bloods wise i have normalised esr etc however i am still experiencing chronic pain in my hands, wrists and elbows. In the morning it takes almost an hour before the pain dampens down. My issue is my consultant doesnt seem interested because there is no swelling in those joints. Just had an ultrasound and there is no evidence of any damage etc,but the pain is excruciating. Ive had a steriod injection that wore off within a couple of weeks. I have no idea where to turn. My consultant makes me feel like this is all in my head or that all im trying to do is get drugs! Do i try to get advice from another rheumatologist? Is it even a rheumatology problem as the bloods are normal? Should i see a different speciality consultant? Arrrrghhh! I just dont know where to turn. I know there are people out there worse off than me so sorry to you but i dont know who else to turn to.
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