MTX and the ongoing saga

[Someonesmother]

Ok so the ants, itching and burning skin have not subsided even with antihistamines and now my feet are swelling up like balloons, can only show my left as the other is in a moon boot. Haven't heard back from the rheumy, they said they would call back but no call. So my dilemma is to take it or not aghhhhhhhhhhh I hate this.

[Cat111]

Defiantly call them back!

[Someonesmother]

It's after 6 on Friday, can't call them back til Monday. I am just going to have to take it and see what happens

[helixhelix]

Is there an out of hours doctor you could call? If not, you could delay taking it for a couple of days? Ie until you've spoken to them on Monday? That seems to be the middle ground to me between taking or not taking....

[Someonesmother in reply to helixhelix]

There is but my GP is not on and I don't trust the other ones there. I don't want to take the MTX mid week as it hits me so bad. I will just take it and see what happens. Obviously it isn't much of a problem if they can;t even be bothered to ring back

[Hidden]

Hi there

Sorry to hear rheumy didn't get back to you. Don't know what it's like at your department but mine are horendously over stretched. One time I rang the helpline left a message and never got a reply. When I asked about it the next time I saw a nurse in the corridor she said they were having to prioritise the calls. Everyday new patients are diagnoses but the hospital manager do not give additional resources. Best thing to do is complain. The more people that complain the more likely the management are to do something.

By the way why are you on mtx if it makes you feel so crap? Seems unacceptable to me. I would not take the mtx and ring the hodpital again on Monday. If the swelling is uncomfortable ( it looks it) I would ring 111. An emergency doctor doesn't need to know all about your RA. They are treating a drug reaction. Good luck and let is know how you get on. Hugs ((((( )))) kikideelili

[Someonesmother in reply to Hidden]

Thanks for your reply. I know they are stretched beyond capacity but as I am known for my horrendous chemical sensitivities, I thought they may have rung back. I see my rheumy privately so I will just call his service on Monday and tell him what is going on and that I can now add that after taking the MTX on Friday night I woke up positively suicidal on Saturday to go along with everything else. I am done with this drug.

[Hidden]

I don't blame you love one bit! It's so unfair isn't it that some people go though their lives without needing a doctor and others are never away from them. I hope the rheumy has some words of wisdom for you on Monday. Take care kikideelili x

[Someonesmother in reply to Hidden]

That doesn't worry me, I haven't ever really wondered why others seem to sail through life. it is just that I wish there was one drug that I could take for this that didn't cause weird side effects in me. I cannot believe how very angry for no reason I was yesterday morning, I isolated myself for the rest of the day as I was worried what I would say or do. I had the same reaction to the pill 30 years ago. I would have killed the cat if I had caught it, lucky he was a quick runner hahahaha. That is so far from what my personality is it scares the proverbial out of me. Imagine if I had been out driving. eeeekkkkkk I will call and leave a message tomorrow. My guess is he will want me to persist with it, but I am not, I will not be so out of control as well as the other bits like burning skin and swollen feet and legs