Palindromic Rheumatism

[Blackdress]

Hi, I have only just joined this so hello, but I was diagnosed with palindromic rheumatism about one year ago. It started with a swollen finger then a couple of months later a swollen wrist, then ankle etc. I have recently been getting a joint swelling and pain recently and more often. As soon as one goes another starts. If anyone has palindromic rheumatism is this normal? I was referred to a rheumatologist and saw two consultants, I had an mri and when they diagnosed PRsaid i was discharged and headed home with leaflets abput it. I have booked the doctor on 24th June but if anyone out there has PR it will be nice to hear about how often u have flare ups etc. Thank u. Lisa 😊

[Ontwowheels]

Palindromic rheumatism can progress to rheumatoid arthritis. If you flares are becoming more frequent or more severe then I would ask your GP if you can be re-referred to rheumatology. Might also be worth checking bloods for RF and Anti CCP.

[Blackdress in reply to Ontwowheels]

Hi, thank u very much for replying. I have a doctor's appointment on 24 June and i will definately ask to be re-reffered.

[JLgee]

Hi, I also have palindromic arthritis (along with ulcerative colitis) I was diagnosed in June last year after having flares since the December before. It started with sore and swollen elbows. Now it moves around from joint to joint. I’ve just come out the other side of a wee flare (fingers, feet, wrists, knees) I see my rheumatologist every 6 months and in October she put me on hydroxychloroquine which seems to have helped a bit by making the flares less often as previously I was getting a big flare at least once a month. Hopefully you can get referred again and get some help!

[Beviejon1]

I've had this for 26 years.I also have RA.I was on relocate at one time for 10 years.During that time I had very few PR flares.I was once told by a rheumatologist that once you develop RA the OR should go away.Mine never did.

My flares are worse when the weather is unsettled.Hi humidity low pressure always brings in a flare.I have been on legitimise for over 2 years and it has helped.

I never know where the next swelling will be.In 26 years I've literally had them everywhere in my body.The ones I get in my throat scare me the most.

[stiff19 in reply to Beviejon1]

Just read your post I was diagnosed with this then another rheumy said not and stopped my hydrochloraquine which I only had for a few months and wow I have numerous symptoms swellings face hands feet chest mouth sore in ears loads of stuff then quietens then back and hands all bent today . Feel so bad and think what if first rheumy right as symptoms fit but more I’m not sure if are ?

[Blackdress in reply to stiff19]

I have to say it has never affected my ears, face and chest. I'm having a flare up at the moment, feet, left ankle, both wrists, knee and top of the right hand hand one finger, all painful, swift and swollen. Up until this time it has been ok for a month but I'm slightly stressed at the moment and am wondering if that contributed. I had a seizure three weeks ago, I havent had one for 6 years, so it does make me wonder. Like yours it comes and goes. I take paracetamol which again I havent had to take for over one month. Do u take any painkillers and if so do they help?

[stiff19 in reply to Blackdress]

I do and they probably take the edge off but the hydroxychloroquine seemed to help.

[janmary]

I was diagnosed with acute palindromic rheumatoid 8 years ago. (but seropositive). my rheumatology dept consider it another form of rheumatoid and treat it as such. they predicted that it would progress to a more typical RA presentation in time, and they were right. ( although I can still get random flare ups just about anywhere - neck today).

Hold out for another referral and further investigations, and best wishes.

[stiff19 in reply to janmary]

That’s what’s weird I have symptoms maybe not associated but ankles elbows neck back wrists fingers get unbearable and swelling and wayward fingers . I worry it will turn to take without help if it is truly that . Thankyou

[Blackdress]

Thank u everyone. Can i just ask one thing. I have been at work today and the bottom of my left foot feels like it has a pebble in it, this has happened before, however, as its happening today i thought i would ask if any of u get itching when you get swelling and inflammation as this is also happening? I had this last week when my big toe plus two toes swelled and my left hand all at the same time plus itching, the itching can at times be unbearable. Hope u don't mind me asking all these things. When I think about it I don't think i should have been discharged and think it would have been better to be seen every 6 months like jlgee says then I could have asked the rheumatologist questions rather then ask u all questions although this too is also very helpful. Thank u.

[JLgee in reply to Blackdress]

I have previously had my big toe flare up and it was unbearably itchy. It’s never happened again though (the itching- the swelling definitely happens) I’ve also had the feeling of the bottom of my feet swelling. It feels as if i’m walking with a ball in the arch of my foot.

[Blackdress]

It is so reassuring to hear about the itching. Ice packs come in handy 😊 thank you very much.