Hi everyone. Am starting my treatment with Enbral tomorrow lunch time Have the nurse calling to do it. Fingers crossed all goes well. Been a hard decision to take and caused me a few sleepless nights, but having 5 new joints go into flare in a 2 week period made my mind up. By the way I failed my DAS 28 on both tests 4.73 and 4.85 thus not meeting the 5.1 NICE criteria . My nurse could not understand how my crp/esr could be so low as in her words "I can see in front of me the swelling and inflammation in your joints", plus was only shuffling that day as had flare in heel (plantar region) and 2 toe joints in each foot. My nurse did say I was one of those whose inflammation does not show in blood results, and that was what let me down on the DAS 28. Doing some research online on low esr in RA patients with swellings and joint tenderness it does seem to be quite common. Anyway they seem to have been able to over rule the criteria and on following appt was asked which biologic I would like! I have emailed this information to James of NRAS as there was a poll about falling inbetween the 3.5 and 5.1 and not being able to access biologics. It does upset me to see how different treatment for RA patients across NHS local authorities differs. We need a campaign to say 'We are not numbers, but symptons, please treat us accordingly'.
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