Have been on and off Prednisolone since last February... - NRAS

NRAS

37,102 members45,835 posts

Have been on and off Prednisolone since last February but am also recovering from Mumps and started Methotrexate on Monday. Feel terrible.

pippin_fort profile image
5 Replies

Face is totally swollen, eyes have hoods, glands are still swollen from Mumps ( had a scan yesterday to confirm this) am exhausted, dizzy at times, have headaches, have developed mouth ulcers today and keep having to lie down. Have also been wheezy this week but this has improved over the last couple of days. Started Methotrexate on Monday night and took folic acid today as instructed. Have left messages for the rheum nurses but no one has called back. I know I need to give this a go but now still have joint pains, slight deafness and gland problems which I originally went to the Drs with but have collected a whole load of extra problems not to mention weight in the process. Not a happy bunny. Any advice? On 10 mg Methotrexate weekly, 10mg folic acid weekly and 10 mg/ 15mg Prednisolone daily alternating between the doses as well as paracetamol/ co-codamol and Tramadol as necessary.

Written by
pippin_fort profile image
pippin_fort
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Shy535 profile image
Shy535

I'm sorry you're feeling so awful. When I was on mtx, I started on a low dose...so I didn't have many strong side effects in the beginning. It really didn't do anything for me even after increasing my dose...still had pain, stiffness, so my doctor took me off of it. I do hope you get some relief soon. Hang in there.

Hello

If you cannot get a hold of the RA nurse have words with your GP AND EXPLAIN WITH URGENCY. The other thing is call the A and E help line. The medication you are taking is an immunosuppresent so it could be holding back your recovery, so I would say it is important to take medical advice as mentioned above. Did you tell the hospital what you were taking, did you discuss with your GP the MXT ?.

Good luck

BOB

If your face has just swollen up since taking the Mtx I would seek urgent medical attention - as we are at the weekend this will need to be the out-of-hours dr service for your surgery.

Cece x

oldtimer profile image
oldtimer

Often people are advised not to take MTX while they have an active infection. You should get advice before taking another dose.

pippin_fort profile image
pippin_fort in reply to oldtimer

GP earlier in week said that virus would be long gone as was diagnosed with it in November even if glands still swollen. Am at a loss to know what to do. All I know is that I feel rubbish, although marginally better today after taking folic acid. Thank you for your thoughts.

Not what you're looking for?

You may also like...

Methotrexate after affects

I have 12.5 mg methotrexate injection weekly take folic acid, but still feel crappy for 24 hours...

Folic Acid

Hello again, how much Folic Acid are people taking in a week?! I used to take 5 mg the day after...

Folic Acid dosage

Hi - the increase in folic so far to 4 tablets per week seems to be working because despite the...

folic acid

Hi I’m taking 15 mg methotrexate & 5mg folic acid the day after . The day after the folic acid I am...

Experiences with Biotin for Methotrexate hair loss

Has anyone tried taking Biotin to help reduce hair loss caused by Methotrexate? I began taking...