Taking time to listen and understand....

[Prairie]

I had a call from my local doctor to see if I had heard from my rheumy nurse about my gold injections which were stopped as I've felt so poorly....still waiting on rheumy call? My local doctor asked how I've been what symptoms I've had and she had so much time in listening and understanding about my complex health issues....she has booked me in this week to have other blood tests and appointment to see her on Friday...to check out my lymph nodes which i have after 5 weeks on my neck...she is also sending me for a bone scan....(this doctor was running late with her appointments and I thought she was very helpful to have the time to listen and help me out) I felt a lot happier when I had spoke to her...as I'm having more tests done.....I'm still waiting on phone call from rheumy...but at least I'm a little further forward with having more tests...sometimes we just need someone to listen....hope you all having a better start to the year...sending you all hugs Nicola

[allanah]

Great that she listened and is taking things seriously, good luck and let us know how u get on xA

[Prairie in reply to allanah]

Thank you allanah how you getting on with tests....?

[allanah in reply to Prairie]

Go at 4 pm today to see plastic surgeon to talk about biopsy and ultrasound on Thursday . Thanks for asking. How r u today ?

[allanah in reply to allanah]

Oh and my bone scan was fine!

[Prairie in reply to allanah]

That's one good news..I'm not to bad today considering I didn't sleep..I feel better in myself not taking any dmards even though they help my joints they don't agree with me...will have to see what consultant says as I have to be on something it's just what???? Good luck today let me know how you get on big hugs Nicola xxx

[allanah in reply to Prairie]

Ye Nicola, I had that discussion over mtx, it makes me SO ill that I couldn't see me staying on it for life, so he changed it to sulphasalasine which I was happier on. Try and nap this afternoon ? xx

[Prairie in reply to allanah]

Thank you sending you hugs xxxx

[Prairie]

How are you now after been admitted to hospital ?...

[Trulyfedup]

Hi, I know how lovely it is to have a doctor who really listens I have just lost my wonderful doc of four years and I feel completely lost and afraid...I'm seeing my new one this coming Saturday and am nervous...I'm sorry you are not too good, I've got a bad day today...vomiting and blisters and soaking wet...in bed...I hate this thing. It's been a month since put back on MTX after being taken off due to side effects...looks like they are coming on again..I am still waiting to hear whether or not they put me back on infliximub (been waiting to hear for a month!!). I really am so happy you have a doc who listens I know how wonderful that feels...I'm very tearful today and feel so guilty as people far worse than I on this site..just not coping well...I wish you lots of answers and more understanding because it does help...maryx

[Hidden in reply to Trulyfedup]

Wishing you all the best for Saturday Mary, hope your new doc is a good as your old one was

Kath xx

[Trulyfedup in reply to Hidden]

Hello, thank you...haven't heard from you for a while how are you? I'm upstairs at the moment in bed at my mums..I can't go down because I'm crying so much..I don't know how to stop but sometimes I guess it's the best thing isn't it...to have a good cry...I think I am in need of one of your poems...a funny one...maryx

[Hidden in reply to Trulyfedup]

Sorry to hear you're not too good Mary, I'm ok. This poem isn't really 'laugh out loud' funny, but I hope it makes you smile anyway.

You Know Her

"You know her.

She lived upstairs in the third floor flat

and always wore a turquoise hat.

Remember last summer:

that knee length skirt

and sandals that looked as though they hurt?

Her feet were purple

with flaky nails

and her hair hung down in limp rat's tails.

You know her!

I wish I could remember her name

but I'm sure you know her just the same

with that huge denim bag

with a hole in the side

and the turquoise hat

with a brim that was wide,

you know her.

You must remember that awful laugh

that made her sound like a sick giraffe -

yes I know giraffes don't make a sound

but you know what I mean -

oh never mind,

but you know her,

yes, you know her.

Well just last week they found her - dead.

Took too many pills

or so they said:

mixed with Whisky - or was it Gin?

Well anyway, it seems a sin

that someone can go

all alone, just like that,

and she was still wearing that turquoise hat!

The room was a mess;

I heard them say.

When the council find out

there'll be hell to pay.

Like something you see on 'Life of Grime',

oh I think it all is such a crime.

So you do remember -

she owed you ten quid?

Yes you knew her.

I said you did!"

Love Kath xx

[Trulyfedup in reply to Hidden]

That is brilliant...how sad but it's very true..this thing often happens..so perhaps I'm luckier than I know...I should be very happy as my daughter Kate is being started off for baby Ruby to arrive...this will give me seven grandchildren so I am very blessed..in a roundabout way you have helped thank you Kath...thank you honey.x

[julie_warwick in reply to Trulyfedup]

it's awful when you feel like this isn't it , been weepy myself this week , feel like I'm being a right misery. nice to know I'm not alone x

[Trulyfedup in reply to julie_warwick]

I'm sorry to hear you too are weepy..let's cross our fingers that it passes and for anyone else who is feeling low. Maryx

[julie_warwick in reply to Trulyfedup]

sounds good to me. take care x

[Prairie in reply to Trulyfedup]

Hi Mary never feel guilty for other people been a lot worse....we all know there are people worse off and also people who live life to the full...your tears your battle everyday is what your about...I always think its what you have to deal with about yourself...I never use to cry much...I think I cry just about every day now...there are some family members who say negative comments to me...and one time I use to sit back and take it...now I speak up and say how it is...my hubby blames my medication...ha ha I'm not on any at the moment..so that's not true...I try to stay positive but somedays we can't...it's like a roller coaster with my moods...but I always say most people on this site understands what we go through and I'm so please I have this connection...sending you big hugs and how lovely news for you granddaughter on the way...lovely name ruby...and wish you good luck with your new doctor... Nicola x

[Hidden]

Oh how lovely, I have 7 too. 6 are boys and only the one girl. But mine are aged between 12 and 27

(yes I really am that old). Glad my poem made you feel a bit better.

Kath xx

[allanah in reply to Hidden]

What a lovely conversation between you all! Poems that was so sad but so lovely. Mary, you are crying so much recently, i hope when talk to your GP that they are wonderful and pull out all the stops. I hate to hear you feel sad. Please be happy for your new grandchild instead, you don't look old enough! And Prairie, hang on in there won't you! Hugs to you all Axxxx

[Prairie in reply to allanah]

Ahh allanah how lovely you are...sending us all lovely words...how did you get on yesterday ??? Big hugs Nicola xxxx

[Prairie]

Hi I haven't I'm going give them a call today before I go for my blood tests...I think they should have called me by now....thanks for your support xxxxx

[Prairie]

Hi I phoned the secretary as I didn't want to leave a message on rheumy list....I explained my concern and that I was waiting on phone call...the secretary wasn't very helpful at all told me they are busy...then I got my back up as I said that's not my problem...been busy for two years now...and I shouldn't have to be phoning up to remind them....anyway secretary is going to email nurse to say I've been on phone and to phone me....when I got off phone I felt angry...I thinks it's very unfair we have to feel like this because the rheumy department is busy.....I'm so lucky I have a local doctor who is doing other tests for me..pity this doctor couldn't help me with my arthritus rant over.....big hugs Nicola xxxx