A happy Christmas but wish I had felt better....

[Prairie]

Had a lovely Christmas with my family but had my gold injection on Christmas Eve...not sure if this was a good idea..but again I didn't really have a choice...waking up Christmas morning I felt very unwell...weak...extremely tired and I made sure I wasn't in bed too late on Christmas Eve..I suffer night times sweats...maybe im going through pre menstrual hormonal stage too...my body feels like its been hit by a bus...flu like symptoms...I'm extremely tired...and I always end up with a rash on my face when I feel this unwell....anyway my rheumy nurse told me on Christmas Eve urine was fine..bloods okay..keep taking the aniema tablets...and my joints didn't look to bad...Nothing has change with my lymph nodes they are the same on neck...no smaller no bigger...but still there...not sure at this moment why...think it may be my body getting use to gold injections.. I'm back at hospital New Year's Eve for another gold injection...not looking forward to this feeling again...but then I have to give this drug a go...I'm ranting on because I just want to feel okish but as you all know its not as easy as that..my body may be having a battering at the mo with finding a balance..I will say my family and Christmas made it so special and I had a lovely time...but just didn't feel as well as I wanted to...mind it could have been worse...at least I was up and about and watching my two special sons open pressies which is a memory to treasure...hope you all had a pain free feeling well and enjoyed....love Nicola x

[sylvi]

Nicola, Its no fun being like this is it. It will get better eventually. I am glad you had a lovely christmas day even if you don't feel top oh. Love from me.xxxx

[Prairie in reply to sylvi]

Thank you Sylvi we have to take the good days with the bad...it's ongoing what we all suffer so I suppose we do just have to take each step at a time...wishing you a happy new year love n hugs Nicola xxx

[Hidden]

Just wanted to say that I so recognise this feeling. I'm glad that you had a lovely day despite the physical 'blahs' - just know that it will get better and you will eventually find a treatment that suits you. I just wish that it wasn't such a long journey to get there!

Most of the treatments that I've had have caused me to have hot and sweaty intervals so it may well be a side effect. Hope you are soon feeling better

Cece x

[Prairie in reply to Hidden]

Thank you cece we have a long journey to try these drugs out to see which one will suit us...the side effects...feeling blah...until the right one kinda comes along...if there is such a thing...but then I have had bad days not taking any meds so I guess...we can't win either way.. Wishing you a happy new year love Nicola xxx

[Hidden]

Hello

The NHS is always generous they gave you gold for Christmas !!. We all have problems with this group of medications sometimes I suppose. sadly grin and bare it comes to mind although if the medications are causing contraindications you should have words with the RA nurse when you go see her on the New Years Eve

One thing you had, a good Christmas with the family, that is what it is all about, Christmas is for families.

All the best, Happy New Year

BOB .

[Prairie in reply to Hidden]

Ha ha like it bob..lucky me gold on Xmas eve....I will have a chat with her but your right for now...it's grin and bare it and see how it goes...all the best to you happy new year ..... From the gold/iron lady hehe....xxx

[Prairie]

Thank you it's annoying when our minds are active but bodies feel ill...but yeah boys enjoyed it....I love Christmas too tc love Nicola xxx

[miss]

Hi Nicola i hope you start to feel brighter soon it's not much fun is it when you feel rotten with this disease. Sending you a warm hug xxx

[Prairie in reply to miss]

Hi thank you for your reply...sending you best wishes and big hug too