Hi, I'm due to start leflunomide on Thursday, has any... - NRAS
Hi, I'm due to start leflunomide on Thursday, has any one got any feed back on how it is? I've had RA for 20 years and everything I try fail
hi zoe ive been on leflunomide since January have had a few side affects with it but nothing major, not sure its now working for me but hope it works well for you. take care michelle x
Hi...... Who on here has the Infusion type Biologic med? Is that better than injecting ourselves??? I know need to go back on Enbrel or so etching similar, but I keep getting told that the infusion type is best??.........is Leflunomide a Infusion? Or injection? Sorry Zoe, wish I could help! but I don't know that Med...... I soooo Hope that this med will work for you Jill x
I have had tablets, injections and infusions. The consultant decides which type of drug is best for you and it's down to I think some drugs are broken down in the stomach acid therefore might not work therefore they are given it by a drip.
Other drugs work fine by mouth , so I really don't think infusions any better or quicker in reality, it depends on the drug being given. But other drugs do work quicker by drip ie antibiotics etc! Confused? U will be!
Different dmards or anti tnfs work on different types of arthritis so the consultant will generally advise u on what's best for you.
The nras site has loads of info on dmards and biologicals if you have time to have a look as well. And by the way it's great you are now asking loads of questions, I find this site so good for that as you say xx
I have (actually on break at the moment) infliximub infusion every 8 weeks. I don't know if this particular one is available in injection form.
I tried Leflunomide and it didn't agree with me...mouth ulcers etc but I seem to have got on ok with Inflix....
I like lots of others,inject myself each week with MTX. (On a break from that too).
I don't really know enough about the other drugs, I should do really, I may look them up online and see what's on offer!!!!!
I hope you are faring ok today . Maryx
Oops typos, should Read Something, but IPad typed in etching ........
Hi Zoe
Leflonomide in one of the newer DMARDS. I tried it early on in my disease last year. I suffered persistent diarrhoea with it, that was the reason I stopped it. Trialled it for 3 months with little effect. But don't let that put you off.
Good luck and let us know how you get on.
Hi I have just come off this due to constant diahrrea, but it worked really well for me. I was on it for a year.
no feedback of this drug but good luck!
I got leflonamide and have been well on it , in as much as it definitely reduces my swelling. It comes in tablet form and took for me about six weeks till I felt the inference. How great u r getting a good dmard and I hope it makes a huge difference to your life xxxxxx
Hi I have been on leflunomide for 4 years. Firstly alongside infliximab (infusion) the combination of these two drugs put me into remission for 2 yrs during which I lowered my dose to 10mg/day. My body grew familiar to infliximab and it stopped working so I changed to tocilizumab (also infusion) but have kept taking leflunomide although now a 20mg dose. I have had no side effects to leflunomide and would recommend it as when taking methotrexate I kept forgetting to take folic acid.
Good Luck with this drug.
I've had absolutely no problems with Leflunomide - but it seems to be a very individual thing as to what suits you:-}
Good luck,
Cece x
I've been on Leflunomide for almost two years and so far it's been the best and most constantly effective DMARD. No side effects whatsoever. Hope you'll find the same thing.
I tried it for 6 weeks but I got peripheral neuropathy in my hands and feet and had to stop immediately so I didn't get to the point of benefit but that was the only reaction I got. Mind you I have a strange and weird body that has bizarre reactions to things. Give it a whirl it may work for you
Well here goes .... First one today!!!