Posts - Not Defined By Endometriosis | HealthUnlocked

Not Defined By Endometriosis

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Collaboration on Endometriosis Care Pathway Project

Hi everyone, My name is Alaina Zubair, and I am currently pursuing an MSc in Healthcare and Design at Imperial College London. As an endometriosis patient...

Hi everyone, My name is Alaina Zubair, and I am currently pursuing an MSc in He...

•5 months ago

My idea to easily diagnose endometriosis from home

Hi everyone, my name is Ellen Hutton. I am a current Biomedical Science student currently working on a university project to develop a business plan. My idea...

Hi everyone, my name is Ellen Hutton. I am a current Biomedical Science student ...

•1 year ago

Seeking support and have some questions

Hi everyone, I have not been officially diagnosed with Endo yet but my doctor at the end of my pregnancy said it was a possibility due to some symptoms I...

Hi everyone, I have not been officially diagnosed with Endo yet but my doctor...

•1 year ago

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Tools to help with Chronic Illness

💔 Living with a chronic illness can be challenging, but having the right tools can make a big difference. Here are some of our top picks to help you manage...

💔 Living with a chronic illness can be challenging, but having the right tools ...

Administrator•2 years ago

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Self-care with Chronic illness

Self-care is an important aspect of managing chronic health conditions. Some strategies for self-care include: Maintaining a healthy diet and exercise...

Self-care is an important aspect of managing chronic health conditions. Some str...

Administrator•2 years ago

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Surgery experiences? I'm nervous...

Hi, I'm new to this site... Next week I am going for surgery for a endometrioma (10cm) which may be a Borderline Ovarian Tumor. I am nervous because they...

Hi, I'm new to this site... Next week I am going for surgery for a endometrio...

livingwithlemons

•2 years ago

Visanne hormone treatment

Hi I have been recommended Visanne by my gynecologist, which she said may help to shrink an endometrimoa on my left ovary (around 3.5cm), and help with pain...

Hi I have been recommended Visanne by my gynecologist, which she said may help ...

•3 years ago

Help-itchy skin!

I am on slow release morphine tablets, my skin is on fire all of the time, all over itching like crazy. I have scratched until its raw. Any suggestions on what...

I am on slow release morphine tablets, my skin is on fire all of the time, all o...

•3 years ago

Pain

So I had to vent 5 am woke up to excruciating pain lower back down my legs and groin area it was probably the worst pain I have had so far. I can’t wait to...

So I had to vent 5 am woke up to excruciating pain lower back down my legs and g...

•4 years ago

Pressure and endo/ adeno

Does anyone have constant pressure on pelvic/ groin area this is new symptom probably a month now just constant deep sharp pressure. Like I said in my last...

Does anyone have constant pressure on pelvic/ groin area this is new symptom pro...

•4 years ago

Adeno/ endo chronic pain

Hey all new to this site got referred from a friend from the adenomyosis site bc well I have both got diagnosed in November and preparing to have hysterectomy...

Hey all new to this site got referred from a friend from the adenomyosis site bc...

•4 years ago

Pain now under ribs and in my back...

Hi all - I'm hoping to find someone with a similar experience to mine. I'm 45 and have had endo for decades (multiple surgeries to laser/cut/remove it) -...

Hi all - I'm hoping to find someone with a similar experience to mine. I'm 45 a...

•4 years ago

Newley diagnosed

hi all, im new here, im 38 and have just been told 2 weeks ago after a cystoscopy as i was urinating a lot of blood that i have endometriosis in my bladder, i...

hi all, im new here, im 38 and have just been told 2 weeks ago after a cystosco...

•4 years ago

Diagnosis

Hi, did anybody else struggle with getting a diagnosis? I went to doctors countless times in my last years of primary school and first couple years of...

Hi, did anybody else struggle with getting a diagnosis? I went to doctors countl...

•4 years ago

the first period after Zoladex 10.8

Hi all, I am 28 . I have stage 4 endometriosis. I was injected Zoladex 10.8, three months ago. Now , I want to know , How is the first period after Zoladex ?...

Hi all, I am 28 . I have stage 4 endometriosis. I was injected Zoladex 10.8, thr...

•4 years ago

Female health books I'm reading

Hi ladies, Is there any book anyone is reading about female health? Endo? Fertility? I just started reading 'Pain and prejudice - A call to arms for women and...

Hi ladies, Is there any book anyone is reading about female health? Endo? Fertil...

Administrator•4 years ago

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Kate's thought of the day...

I don't miss my uterus. I don't miss my fallopian tubes. But I really think I'm going to miss my hormones as they make me the crazy, quirky, nutty lady I am...

I don't miss my uterus. I don't miss my fallopian tubes. But I really think I'...

•4 years ago

Endometriosis and Covid-19 Live Webinar

On Tuesday, 5th May 2020 at 6PM UK time, Chelsea Centre for Minimal Invasive Gynaecology is hosting a live webinar to answer questions Endometriosis patients...

On Tuesday, 5th May 2020 at 6PM UK time, Chelsea Centre for Minimal Invasive Gyn...

Administrator•5 years ago

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Endo & Covid-19

Hi everyone, How are you all coping with the current pandemic situation? It's so hard with everything going on in our lives as endometriosis sufferers that now...

Hi everyone, How are you all coping with the current pandemic situation? It's so...

Administrator•5 years ago

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Happy New Year

Happy New Year lovely warriors. I hope we are all doing okay and kicking endo in the butt. Just remember you are not alone and if you have any questions,...

Happy New Year lovely warriors. I hope we are all doing okay and kicking endo in...

Administrator•5 years ago

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Beating Endo - A specialist's perspective

Hi friends, Please listen to this podcast episode with Dr Iris Orbuch. She is an Endometriosis Excision Specialist and this conversation is very informative...

Hi friends, Please listen to this podcast episode with Dr Iris Orbuch. She is an...

Administrator•5 years ago

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Do you feel lonely or isolated dealing with Endometriosis?

Just remember that there are about 176 million women worldwide struggling with this disease, fighting to be heard and looking for connections. Remember you are...

Just remember that there are about 176 million women worldwide struggling with t...

Administrator•5 years ago

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Not Defined by Endo Podcast

Hi Everyone, If you like podcasts (or even if you don't), we have launched a new Podcast called Not Defined by Endo Podcast. It is a weekly podcast where the...

Hi Everyone, If you like podcasts (or even if you don't), we have launched a new...

Administrator•5 years ago

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Have a great pain-free week

To all my endo-sisters out there, please stay strong and remember that you are not alone. Reach out to your support system. Stay positive and remember that you...

To all my endo-sisters out there, please stay strong and remember that you are n...

Administrator•5 years ago

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Hello!

Hi, I’m Sinéad, 38 years old and I’ve been diagnosed with endometriosis just two months ago thorough a scan. I have evidence of endometriosis and my ovaries...

Hi, I’m Sinéad, 38 years old and I’ve been diagnosed with endometriosis just two...

•5 years ago

Build your medical team

With endometriosis, you need a holistic approach to fighting the disease. Just nutrition or just surgery or just PT is not enough. To effectively fight this...

With endometriosis, you need a holistic approach to fighting the disease. Just n...

Administrator•5 years ago

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Nutritionist Resources in the UK

Hi Ladies, Dealing with endometriosis requires a long hard look at our nutrition. Many endometriosis patients have digestive issues as well, and little changes...

Hi Ladies, Dealing with endometriosis requires a long hard look at our nutrition...

Administrator•5 years ago

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Accredited Endometriosis Centres in the UK

Hi ladies, It can be tough finding an endometriosis centre with doctors that understand endo and are also excision specialists. If you need to find one, go on...

Hi ladies, It can be tough finding an endometriosis centre with doctors that und...

Administrator•5 years ago

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Deep Breathing and Endometriosis

Endosisters out there, This may sound silly but stress is one of our major triggers for an endo flare. One of the ways to stay mindful and not allow your...

Endosisters out there, This may sound silly but stress is one of our major trig...

Administrator•5 years ago

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Endometriosis and Mindfulness

Endometriosis is not only a disease of the body, but a massive burden on the mind. The anxiety, worries and possible depression cannot be ignored. With...

Endometriosis is not only a disease of the body, but a massive burden on the min...

Administrator•5 years ago

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