Pain now under ribs and in my back...

[TamazinG]

Hi all - I'm hoping to find someone with a similar experience to mine. I'm 45 and have had endo for decades (multiple surgeries to laser/cut/remove it) - diagnosed with stage 4 a few years ago. it was mostly in my lower abdomen, but the last few months its been under my right ribs and the pain has increased enormously. I'm used to low levels, but this is far more. My issue is that is only have one kidney (and one ovary, one lung - just a bizarre condition that wasn't even discovered until i was given tests and surgeries for my endo) and I'm becoming concerned that its now actually on my kidney itself. Has anyone got any experience with this happening? FYI i'm a SAHM and since i stopped working, no longer have medical insurance, so I'm waiting a year or more, perhaps, for an MRI.

Thank you in advance!

[endokicker1 Administrator]

hi TamazinG , I'm so sorry you're experiencing so much pain, especially under your ribs. I had similar pain under my ribs especially around day 3-6 of my period. It was really hard to breathe in and it wouldn't go even with all my strongest painkillers.

I was eventually diagnosed with endometriosis on my diaphragm. Do you find it hard to breathe as well? Some people have also been told they have endo on their lungs and some of them have their lungs collapse especially during or around their periods.

I would advise that you speak to your endo consultant and hopefully more investigations are done. I'm sorry you have no insurance and have to wait, but I'll say the quicker you start pushing for this, the better. Sending you good wishes and hope you get better soon.

[TamazinG in reply to endokicker1]

Thank you. Yes, a friend I know has it on her diaphragm and I’m experiencing those symptoms too. Because of my solitary kidney and the higher risks, my GP has expedited a referral to my preferred clinic and I’ll be seen in August and hopefully surgery soon x