Collaboration on Endometriosis Care P... - Not Defined By En...

Not Defined By Endometriosis

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Collaboration on Endometriosis Care Pathway Project

Alainazubair profile image
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Hi everyone,

My name is Alaina Zubair, and I am currently pursuing an MSc in Healthcare and Design at Imperial College London. As an endometriosis patient myself, I am deeply passionate about improving the care pathway for those of us affected by this condition.

I am working on my dissertation, which aims to design and create a peer-reviewed consensus statement to establish a comprehensive and effective pathway of care for endometriosis. To make this project as impactful and practical as possible, I am seeking insights and experiences from fellow endometriosis warriors.

How You Can Help:

1. Share Your Story

2. Participate in Research through interviews and co-design workshops

3. Collaborate on Solutions

I am currently in the process of creating a protocol and getting ethics approval. I will contact those interested once that is done, hopefully by September, if not earlier. This will include all the official information & documentation needed to help you decide if you’d like to participate. However, all questions are welcome prior to that!

If you're willing to share your experiences and contribute to this important research, please comment below or send me a direct message with your email and we can speak about this further. Your participation can make a significant difference in improving the quality of care for all of us living with endometriosis.

Thank you for your time and support. I look forward to connecting with many of you and working together to make a meaningful change!

Warm regards,

Alaina Zubair

MSc Healthcare and Design

Imperial College London

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Alainazubair
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Joonaspryte profile image
Joonaspryte

I would be happy to contribute, I’m 58 and only just been diagnosed.

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