Hi I feel down

[evie93]

I feel really low. I am awaiting my PET scan results to see if my NLPHL has decided to come back again. That's next Monday. I had a skin biopsy just before Christmas and am awaiting the results of that. The doctor said the mole looked pre cancerous. Then to add icing to the cake I had an infected tooth all over Christmas. I saw the dentist yesterday she removed it and now I have 3 stitches in my mouth. So eating is an issue. I just feel really put upon this year. Lets hope things get better in the new year. I mentioned to my husband that I wanted to go away as soon as the weather gets better. Don't care where just a change of scenery and fresh air. Happy New Year everyone.

[Russ70]

All you can do is wait for the biopsy results and then go from there and at least your infected tooth was removed. Stitches are nit nice but better than what the tooth would have done if it stayed there. I was on watch and wait until I needed treatment for my nhl

[evie93 in reply to Russ70]

HI Happy New Year. I'll be fine it's waiting for the PET scan results that's worrying. I have active nodes so I hope the Lymphoma is not active again NLPHL is incurable and just waiting below the surface to start over again. Because of it nature it always starts at stage 3. really depressing for a new year chat.

[TigerM]

Evie-So sorry to hear you are in that place of concern again. It's definitely not the nicest location. Your idea to get away for a bit is a good one. I'm in Arizona (well California this weekend) and really appreciate the sunshine this time of year. It definitely helps lift my mood. Sending you love, prayers, and joy for 2024. May there be a good report from your tests.

[evie93 in reply to TigerM]

Hi. Thanks for your love and prayers. I'm in London. . Gray, damp, and miserable. Dark by 4pm. It has been particularly wet in2023 so I am hoping 2024 is better. can't wait for spring. The nice thing about living in Britain is that it's only a short ride to the seaside. no matter where you are. One of my favourite places is to sit with a cup of coffee on the cliffs of Dover looking at France on a clear day. The white cliffs are spectacular. Happy New Year lets hope all the conflict stops in the world life is too short for fighting.

[Lizard28]

Happy New Year evie93. Mine came back a month after my treatment finished. I was very down at that time. They put me on watch and wait, I’m now 5 years down the line and still don’t need more treatment. The waiting is the worse bit. Fingers crossed you won’t need treatment for a while. Take care x

[evie93 in reply to Lizard28]

Hi Lizard 28. This nightmare has been going on since 1980 when I was first diagnosed and treated. I agree waiting is the worst. It's like having the sword of Damocles forever hanging over you. Just waiting for it to fall. Another pain are the side affects. Because I have had so much treatment over the years some have never gone. Nerve damage being one of them. Anyway have a happy new year and I must stop moaning and be positive. You take care xx

[Lizard28 in reply to evie93]

Just you moan away, that’s what this wee group is for. You are not alone in this, it’s prob worse at this time of year as well, everything will be held up in the hospitals as well. Sending hugs 🤗🤗