Hi! I'm new.

[MsMindy]

Hello-I have been fighting Non-Hodgkins Lymphoma since I was 35, and for almost 12 years. I had R-CHOP in the beginning, Bendamustine and VinChristine 8 years ago, and am on a Rituxan regiment every three months now. I continue to feel fatigue. Does anyone else feel this way in a similar situation as mine? I would appreciate your feedback. Thanks!

[Shar0n Volunteer]

Welcome to NHL Friends, MsMindy. I'm sure someone on here can relate as fatigue seems to be a common problem for lymphoma patients especially post treatment.

[Joyceosborne in reply to Shar0n]

What about B12 treatment

[MsMindy in reply to Joyceosborne]

Thanks! I'll check into it.

[Judyhoneycomb]

I am going thru the same process. Started in April 2015 and will finish my Rituxan in July of this year... I am very fatigued at times, daily naps.. My biggest complaint is the taste buds aren't there and I'm not hungry or get full very fast. I just started taking the Miracle fruit my oncologist gave me an article that we ordered out of FL. Mine is Mantel Cel and I was stage IV as it was in bone marrow. In remission but doing the Rituxin. I also have neuropathy in feet to mid calf and in finger tips. That started with the RChop and they took one of the chemicals out of the mix. Brain fog at times, but at my age that is common. Ha... I am going to be 77...

[MsMindy in reply to Judyhoneycomb]

Thanks so much for your reply, Judy. I'm so glad to hear you're in remission! Sometimes I feel guilty when I need daily naps, and your post made me feel better. I'm so happy to have found this community.

[BubbaLoo]

Fatigue is my #1 side effect and it is SOOO frustrating! I finished chemo in January and start maintenance in March. I read something that hit home: my brain says go but my body says no. I m just going to keep pushing thru it but it feels comforting to know others are fighting my same battle 👊❤.

[MsMindy in reply to BubbaLoo]

Thanks, BubbaLoo. I like what you had to say. I'm glad you're done with chemo and I hope that the maintenance goes well for you. It is good to know others are in the same battle--we will win! 🌟

[BelindaTupper in reply to BubbaLoo]

Hi Bubba loo, Fatigue is real. Don't be too hard on yourself. It sounds like most of us are dealing with that. I found the fatigue a bit less with Rituxin maintenance compared to chemo, but I know everyone experiences things so differently it's hard to compare. Hope things go well with your maintenance treatments. I remember thinking I'd feel better right away....my nurse said everyone expects that. She said "with the war we waged in your body it will be a while before you feel normal and then at best it may be a new normal of about 80% what you were before". This was hard to hear. It's going to take some patience...I'm practicing up for it....LOL

[BelindaTupper]

Hi MsMindy, Fatigue seems to be the topic of the day. I was diagnosed with NHL in 2015. Had Bendamustine and Rituxin, and now on a maintenance of Rituxin. 2 more to go. As I said fatigue seems too common. I have some neuropathy in my hands and arms at times. I am working full time, gov't desk job, but not too energetic in the evenings. Seems if I overdo things I get a lot of all over body pain. I've decided to hire a personal trainer (having my assessment tomorrow), who's certified in cancer treatment recovery programs. I'm tired of being tired, and I haven't found anything that I can do that doesn't overdue it. Im investing in myself, wish me luck! I hope you get some relief from your fatigue. Hang in there.

[MsMindy in reply to BelindaTupper]

Hi Belinda! Thank you for sharing your story with me. I feel exactly the same as you--tired of being tired. What a great idea to get a specialized trainer. I do wish you well and I would love to hear how it goes. Are you doing the Rituxan every three months? I'm glad to hear you're down to the final two treatments. I've done six rounds of Rituxan during this stint, doing one every three months. My oncologist plans to continue this treatment indefinitely. Soooo, I need to get less tired, lol! Thanks again for connecting with me and all the very best to you.

[BelindaTupper in reply to MsMindy]

MsMindy, yes Rituxin every 3 months. I have some numbness and tingling in my fingers that just started a month or so ago. It doesn't seem to limit what I can do, just feels odd. I had my physical assessment. Next week I get a list of exercises to do. Starting off slow. I'll keep you posted. Good luck with you Rituxin. I hope you don't have to continue indefinitely....no fun! I've had 6, and it will be 8 by the time I'm done. I expect there will be another scan then to see how things look. Will your oncologist do a scan soon?

[MsMindy in reply to BelindaTupper]

Thanks for your reply, Belinda. Yes, I have a scan in April. That's interesting what your nurse had to say. I feel like I'm always pushing myself, and maybe I just need to give myself the "ok" to relax more. I hope that tingling sensation goes away for you, but I'm glad it's not affecting you too much. Thanks so much for your support! 😌

[BelindaTupper in reply to MsMindy]

Hope things are going well for you these days. The fitness program is helping to strengthen my muscles and I've been doing some pretty fierce gardening! I rest when I need to. The numbness and tingling in my hands is still there, by times, but it's not slowing me down. Onward and upward!

[Judyhoneycomb in reply to BelindaTupper]

Hi Belinda, I am like you with the numbness/tingling in my feet and fingers. I have one more rituxin treatment coming up in July 2017, a pet scan before hand, and blood work, hopefully last rituxin July 20. then if all is well will have port removed... I started April 2015 with Chop and then Rituxin that Oct 2015 every 3 months. Wishing you the best too...

[BelindaTupper in reply to Judyhoneycomb]

Hope things go well for you. My last Rituxin is in June. Not sure about CAT scan or PET scans yet. I'll know more when I see the doc in June. I feel like that part of my life is "on hold".... I can't think about it too much or it makes me anxious.

[Judyhoneycomb in reply to BelindaTupper]

Thank you Belinda and I certainly wish you well. I know that "anxious" feeling.. I am on 1/2 pill of generic vallum 3 times a day to help with that and with chronic hiccups. I get hiccups 8 to 20 times a day and that seems to help relax me some... Again best wishes and healing thoughts sending your way....

[BelindaTupper in reply to Judyhoneycomb]

I take Wellbutrin 150 mg. daily. I was treated for anxiety and depression before the cancer diagnosis. Funny, I feel generally better mentally than I did before. I like to think cancer gave me that gift.

[Josie2rulrs]

Im sure someone on the site has the same symptoms....I do not so I cannot offer advice.