Seeking an NHL Volunteer: Are you a social-media-savvy NHL patient advocate?

[krayburn]

PEN is seeking a passionate volunteer NHL Network Manager to engage with our network of cancer patients and families. In this role, the network manager will have a direct line of communication with patients, representing the eyes and ears around them. Network managers are passionate volunteers engaging with our network of cancer patients and families in the digital space. This volunteer virtual role is flexible with a time commitment of at least 2-3 hours a month. If you’re interested and would like to learn more, please email: [e-mail] or visit powerfulpatients.org/patien...

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Tell me what's wrong with this picture?

healthunlocked.com/non-hodg...

"..PEN is seeking a passionate volunteer NHL Network Manager"

" .. volunteer virtual role is flexible with a time commitment of at least 2-3 hours a month"

powerfulpatients.org/patien...

"...PEN Network Managers pay it forward as the communities’ human bridge to survivorship as they understand first-hand the anxieties and uncertainties that come with a cancer diagnosis"

"...Our strong team of compassionate volunteers "

".. does not give medical advice"

"they help health communities adapt to the realities of living with a serious illness."

I'm sorry but 'Accepting the realities' encourages taking eyes off doing and trying to combat the serious health condition. How does that help anyone?

Minimum 2-3 hours a month - what good can that do?

A virtual role? Thats intended to be empowering and compassionate?

I'm sorry but in my experience compassion comes from real people, not virtual.

I'm interested in actual sharing of real health change experiences.

Anyone reading this comment, who actually is looking to improve their chances or at the very least their life quality I advise going onto facebook and looking up health groups of people who are sharing their health journey. It may not be 'medically qualified advice' but its more than an hrs worth of content everyday, and is insightful about how people are managing their problems.

- understanding mitochondrial nutrients

- stratagene

- mercury chelation

- niacin b3 discussions

- Healing cancer study support group

- How to starve cancer

- Follicular lymphoma alternatives

- Dichloroacetate treatment group

- Cancer healing the holistic approach

These are a few good sites I've personally whittled down. There are more...

Yes there are con people.

Yes there is marketing, but staying 'safe' from such 'potentially harmful information' leaves you waiting 10 years for any new cancer drug to be made available as first line treatment. Until then all the chemotherapy, ct scans that poison your body are not going to be improved without good nutrition. Nutritionists also are expensive and biased by their training. Only you know your own body more than anyone else. Empowering your health comes from changing what you consume, how you consume it and its very individual to your own needs.

Between the conservative 'medically qualified mainstream' nay sayers of alternatives, and the extreme alternative con artists against mainstream therapy, there are people improving their lives with incremental lifestyle routines from introducing supplements, health tests, changing their diets, and replacing poor habits.

Personally I believe that is the best way to help. Not by 'accepting the reality' in a virtual compassionate space, but by taking ownership of your own health and committing to improving it.

I apologies if my response seems unnecessarily anti the marketing email above, but it sickens me the efforts of 'marketing incentives' that actually divert people away from whats actually going to improve their lives.