CAR T therapy trial results for DLBCL - Non Hodgkin's Lym...

Non Hodgkin's Lymphoma Friends

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CAR T therapy trial results for DLBCL

Shar0n profile image
Shar0nVolunteer
5 Replies

Demonstrated long-lasting remissions in non-Hodgkin's lymphoma (NHL) patients

tinyurl.com/yac3feb6

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Shar0n profile image
Shar0n
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wmay13241 profile image
wmay13241

My wife, who has aggressive follicular lymphoma, received an NIH CAR-T infusion on March 2, 2016 - she is still in complete remission. Her only remaining side effect is low immunoglobulins for which she gets an IVIG infusion every 4 months.

Shar0n profile image
Shar0nVolunteer in reply towmay13241

It's very encouraging to hear that and here's wishing your wife a long and happy remission which she richly deserves after going through so much treatment.

DougNZ profile image
DougNZ in reply towmay13241

Could you please tell me as to where you are from. I am in NZ and they have not released for trials yet CAR-T cell infusion. I am very pleased with the success of your wife's infusion. I have Mantle cell Lymphoma and currently on the drug Imbruvica. Best Regards Doug Oliver

wmay13241 profile image
wmay13241 in reply toDougNZ

I live in Northern Virginia, USA. My wife is in a CAR-T clinical trial, Bethesda, MD, USA.

DougNZ profile image
DougNZ

Thanks for that. We are hoping Car-T cell trials will begin in NZ next year. I guess there is no hope of getting on a trial in the USA without it costing a fortune. I am doing quite well on the drug Imbruvica but it doesn't last for ever ....so I am told. Hope things continue to go well for your wife. Regards Doug

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