Newbie: Hi l have nhl follicular it... - Non Hodgkin's Lym...

Non Hodgkin's Lymphoma Friends

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Lightup45 profile image
3 Replies

Hi l have nhl follicular it transformed in 2009 and l had an autograph stemcell transplant in 2010 .l sill have fatique and some chest problems also peripheral neuropathy and l had a bad fall yesterday just saying hello

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Lightup45 profile image
Lightup45
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3 Replies
dbalthrop profile image
dbalthrop

Take care of yourself and be mindful of falls. I had four falls, I would get over one abd fall again. I am very careful.

Tinkerbellcgy profile image
Tinkerbellcgy

Hi lightup and welcome to Health Unlocked.

I had Follicular in 2008 with a relapse in 2016 as well as Diffuse Large B Cell Lymphoma (DLBCL) for which I had an autologous stem cell transplant in July 2012.

I had chest issues in the form of plural effusion with both occurrences of the Follicular lymphoma. I am also susceptible to pneumonia.

Fatigue and tiredness is always present as is light headedness.

During last year's relapse of the Follicular, I had several falls a couple of which drew blood on my forehead. Apparently, this is happening more and more with blood cancer patients so much so there is a question asked if you have experienced any falls since your last visit to the Cancer Centre.

Shar0n profile image
Shar0nVolunteer

Welcome Lightup45 - glad you have joined. Sorry about your fall - it can knock your confidence - hope you are okay. I also have Follicular NHL - diagnosed in 2014.

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