Twelve year survivor

[BettyK]

New Here: I have Folicular NHL and had chemo twelve years ago. Know it can come back but grateful for these wonderful years.

[Shar0n Volunteer]

Hi Betty, I have Follicular NHL also - Two and a half years with no treatment apart from initial surgery, yet. I too am grateful for every day of health I get since diagnosis. Continued good health to you.

[Whitley55 in reply to Shar0n]

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[wmay13241]

In November 2011 my wife was diagnosed with follicular lymphoma Stage 4, Grade 3A. She had 50% bone marrow involvement. In 3 years she progressed after R-CHOP, bendamustine/rituximab, and Ibrutinib. She had Idelalisib/rituximab took as her fourth treatment. It worked great for 14 months then a PET scan showed she progressed again. She is now in an NIH CAR-T trial and has been in complete remission for 9 months. Current clinical trial data shows that once a follicular lymphoma patient achieves a complete remission they stay in complete remission.

[BettyK in reply to wmay13241]

Oh I hope that is the case. Would be wonderful. Although I am 80 now so I suppose something else could get me But I've done a lot of wonderful things in this last twelve years. Going through the chemo was worth it to me.

[PositiveLiving in reply to BettyK]

Betty, you are an inspiration and give me hope that my remission will stay long term. Thank you. Debra