Bella

[Porter20]

anyone on Bella after transplant please post how it works for you and side effects. Why were you put on it?

[LavenderRabbit]

I’m On Bella. I’m on it because it is the standard practice for my transplant center. It must be working fine because I haven’t had a single rejection incident. For over a year I saw no side effects, but now occasionally I feel a heart palpitation here and there.( the only side effect I know about) Not bad at all.

[Porter20 in reply to LavenderRabbit]

Thanks

[Oceansideup]

I have been on Belatacept infusion monthly and no side effects for the past year. I agreed to be in a study at the university hospital that did my transplant and Bela is what the study dictated but I will continue on it once the study ends. I like it so far.

[EchoStorm]

I’ve been on Belatacept since my transplant almost 10 months ago. My body kept rejecting the standard go-to medications while I was in the hospital. I’m on Belatacept infusion once a month and so far the only side effects I’ve gotten is a headache and some swelling for a few days after the infusion. Other than that, I seem to be doing well on it.

[Hairme]

My husband was placed on it a few weeks ago since the Cyclosporine would not bring his creatine down. So far he is stable and looking forward to improvements. He has had two so far and will have 5 and go to monthly after that.

[Denise-80]

Hi - I’m 8 years post transplant, I was put on bela, sirolimus and low dose prednisone 5 mos ago due to issues tacrolimus was causing with rapid heart rate. I am a little tired for a couple of days after the infusion but then bounce right back. The regimen I am on now was described to me as gentler than the tac - MMF I was on. The bela has been really great for me. I’ve had some side effects with the Sirolimus, but no side effects other than the tiredness mentioned on the bela. Will bela be the only immunosuppressive you take?

Best wishes,D

[Porter20 in reply to Denise-80]

Sounds like it is to reduce the prograf and up my function.

[Denise-80 in reply to Porter20]

One other positive for me on Bela as opposed to Tac. … my hair is thicker than it was while on tac.

[Porter20]

Thx