Haaruitval

[HSP1965]

Na twee jaar geleden een niertransplantatie te hebben ondergaan is mijn haar net stro.

Haren vallen uit en zien er slecht uit.

Voor de niertransplantatie had ik mooi veel en glanzend haar.

Nu lelijk en dun, komt dit door de bijwerkingen van de medicatie?

Slik prednison, prograft voor afstoting.

Jos

[AndrewT]

Dear HSP1965,

Unless my Translation is Completely 'Off', and I don't think it is, you are asking about Transplants. You are either Due one, or maybe have rececntly had one.... my 'grasp' of Dutch isn't brilliant! I believe that you are asking about Medications too, possibly about Steroids- Prednisolone, maybe Others to. If so, then Rest Assured, that this IS quite Normal. Dosages can be, and often are, 'Changed' Many Times in the first few weeks/ months. (I think this is what you were asking about- or my Dutch is Worse than I thought!)

If we want to 'Communicate' more, it will have to be in two weeks anyway- I think we need a 'Translater' else we risk many Mis-Understandings.

Finally Congratulations on your Transplant.

AndrewT

[HSP1965 in reply to AndrewT]

Haha....thanks you tot asking.My question was about my hair, my Englisch is not good!

Two years ago i was transplanted, my hair is thin and bad.

Ik think it's from the prednison of prograft!

Are there more people with hairproblems after the kidney transplantatie?

Have a Nice day 😁

[Sassyansweet in reply to HSP1965]

I think it’s the tacrolimus causing hair loss. It has my hair I had my transplant 10-31-2020.

[HSP1965 in reply to Sassyansweet]

Thanks, is there a way to avoid this hairproblems?I try so mutch products ?

[Sassyansweet in reply to HSP1965]

My dr told me there is a different med beside tacrolimus but it didn’t work as well. I personally would rather loose hair and have a kidney so I told mine no. Other medication may work for some but with lupus and my other health problems I don’t wanna risk it on myself. I am on 4 msg a day 2 mornings 2 nights . Best of luck to you.

[WYOAnne NKF Ambassador in reply to HSP1965]

Tell your transplant team regarding your hair loss. They may be able to adjust your dose or change to a different med.

[HSP1965 in reply to WYOAnne]

My doctor said to stay with this medication.2 x 1,5 mg prograft (3 mg a day) and 5 mg prednison.

My hair are thinner and looks no good.

[HSP1965 in reply to AndrewT]

Hi,

I used google translated.

I try it in English,

I hade transplant 2 years ago via a cross-over transplantation with 2 other coupels.

Medication is 2 x 1,5mg prograft and 1 x 5mg prednison vit D 2mg perindopril.

My hair is very bad.

Nothing helps!

Have a nice day

[LavenderRabbit]

Hi, I’m one year out from my surgery. Here at my transplant center, patients are on Tacrolimus (Prograf) for one year, or a little less. During that time my hair definitely got thinner. I’m off of it now, hoping and waiting for it to grow back in. I have read where other people say it does grow back once you stop the Tacrolimus. Though it could take up to 18 months before it starts to grow back. Maybe your Doctor can rearrange your medications for you. Please don’t stop it on your own.

[HSP1965 in reply to LavenderRabbit]

Hi,There are no other options for prograft 3 mg a day and 5 mg prednison.

I'm sad because my hair was always good, now looking bad and dry.

I hoped thad there something is wath helped 💇

[LavenderRabbit in reply to HSP1965]

Just to let you know what I am taking, I am taking 5 mg of prednisone once a day and 750 mg of Celcept (Mycophenolate) twice a day. I also take Belatacept as a infusion once a month.

[HSP1965 in reply to LavenderRabbit]

Hi,

Thank you.

I asking my nefroloog next week! 🙏🏻

[LavenderRabbit in reply to HSP1965]

Please let me know what your doctor says. I’m very interested in the reasons other programs and countries take different drugs.

[HSP1965 in reply to LavenderRabbit]

Oké thanks!

[Darlenia]

Hi! I have nothing additional to add to all the good advice you've received. I simply loved seeing your question in the Nederlands taal! I understood it well. (I also knew you would instantly change over to English.) My parents immigrated to the US from the Netherlands after WWII and I so miss seeing that part of my heritage. Thank you!

[HSP1965 in reply to Darlenia]

Haha......ik dacht schrijf gewoon in het Nederlands!Wat leuk dat je het toch kan lezen.

Groetjes aan de Nederlanders in je familie.

[Darlenia in reply to HSP1965]

Thank you! My family sends greetings to you too! We trust your doctors will manage to return your hair to its normal state soon. Wishing you all the best in life!