Belatacept headache?

[byg92]

Has anybody experienced headaches as a side effect of belatacept? I had my first infusion two days ago and I have had a dull headache since yesterday. Just wondering if the two are actually correlated.

[LisaSnow]

Are you on both tacrolimus and belatacept?

[byg92 in reply to LisaSnow]

No, I had my last dose of tac the morning of my infusion of bela.

[LisaSnow in reply to byg92]

I hope your headache is better. Why did they switch you? You had your surgery very recently no?

[byg92 in reply to LisaSnow]

They determined Tac was causing poor function in the new kidney from a recent biopsy. I guess that’s not an uncommon thing. Tac can do harm to the organ sometimes.

[LisaSnow in reply to byg92]

I am glad they cought the rejection episode early. Headache can be nonspecific so it is not possible to say it is because of the infusion. Give yourself a.couple of.days to rest. I hope the new protocol works well for you.

[byg92 in reply to LisaSnow]

Thank you Lisa!

[jeanngal]

Hello! I did have and do have headaches directly after I get the I infusion. I find that if I take two tylenol just before that helps. I am just about one year into the infusions and the headaches have subsided. I usually feel kind of like I have the flu the first 24 hours but again, the tylenol has helped. The side effect I'm dealing with now is joint pain, especially in my hands. Good luck!

[byg92 in reply to jeanngal]

Thank you so much for the Tylenol tip! And I totally felt kind of flu-ish so I’m (sort of) glad that’s normal. I’m so sorry about the joint pain and I hope that subsides like the headaches did. It’s so hard to treat pain as a kidney/transplant patient!

[LisaSnow in reply to jeanngal]

Do you know how Belatacept causes hand pain?

[jeanngal in reply to LisaSnow]

Not really sure. It started about 3 months after I began the infusions. I read that joint pain was a possible side effect and so that's all I can contribute it to. It's bothersome in my thumbs and pointer fingers and sometimes my elbows are sore to the touch.