Using social to try to get donor - Kidney Transplant

Kidney Transplant

3,688 members2,119 posts

Using social to try to get donor

Staygood profile image
11 Replies

My GFR is 18. I was thinking to create a social media campaign on Facebook and gofundme to try to find a kidney donor.

Did anyone here do something like this in the past?

Using gofundme to ask for a kidney donor (not money) and posting the gofundme page all over Facebook.

Any thoughts on this? Ideas?

And is being gfr to early to go this route?

Written by
Staygood profile image
Staygood
To view profiles and participate in discussions please or .
11 Replies
Donaldson0007 profile image
Donaldson0007

I did use social media, started a website, T-shirt campaign etc. Your Drs will advise when its time to begin the process. Once you are approved and make the list, you will begin looking for a donor.

Staygood profile image
Staygood in reply toDonaldson0007

Web site. Good idea to do. May I ask what you used to create the web site? I don’t know any of this stuff. I heard you can use some site creator like wix or square space. But it cost money. Any place you know which they will support cause?

So I shouldn’t do anything until I am approved on wait list?

Donaldson0007 profile image
Donaldson0007 in reply toStaygood

I believe it was godaddy and a friend of my sponsored it for me. Plus Facebook, Twitter etc. which are no cost, also campaigned at work as I work right up to the transplant. It wasnt easy and I should not have done so, but you cant un-ring a bell.

I would talk with you Doctors and ask when they suggest you begin looking for a donor.

Staygood profile image
Staygood in reply toDonaldson0007

Thanks again for your reply! Really helpful info.

I will look into the web site maker.

One thing I am afraid of is exposing my self to friends and outside world. And from what you just mentioned a o it the work and un-ring bell seems that should be a concern.

Thanks so much again.

Donaldson0007 profile image
Donaldson0007 in reply toStaygood

I had a lot of support - at least 25 coworkers were tested for a match - maybe more that chose to be anonymous. And a lot of public support as well. I meant that I should have taken it easy and not worked as long as I did and made myself a priority instead of my job. That same job let me go 14 days after my surgery so there was no loyalty on their part, only mine. All I would have done differently is taken time off to prepare.

Staygood profile image
Staygood

Yes. How can you help? Private message me?

Transplant314 profile image
Transplant314

instagram.com/p/B4h65mCF2xd...

Not certain this link will go through. Here is an example of and ad for social media

Staygood profile image
Staygood in reply toTransplant314

That’s perfect. Thanks for sharing that. Exactly what I was looking for.

Razorback1803 profile image
Razorback1803

My wife and oldest daughter put together a site on FB and it generated awareness and a lot of candidates. I knew most of these people, but some were just people who wanted to help.

Tula6 profile image
Tula6

My daughter shared with her friend on FB as she or my husband were not a match. Her best friends, friend stepped up, she is young with 3 small little boys. After a year of testing, she was a match. Forever grateful and blessed.❤️

Dara3351 profile image
Dara3351

My insurance paid mostly everything. I paid .2%

Not what you're looking for?

You may also like...

Posting on social media asking for donor

Hi I am planning to use social media, Facebook. To post and ask for kidney donor from friends and...
Staygood profile image

donor

I have a donor that is my cousin, perfect match. She was a drug attic over 20 years ago and totally...

Is it worth to get transplanted?

I have been following the forum in this site for a while. However, everytime I read many of the...
hope1419 profile image

received A Deceased Donor Kidney Tuesday

On Monday morning this week I received a call saying I was third on the list to receive a deceased...
Jayhawker profile image

Kidney donor

Goodmorning Im 63 years old and suffering from kidney failure stage 5. Im looking for a kidney...
Alexia1319 profile image

Moderation team

See all
JessicaJ_NKF profile image
JessicaJ_NKFAdministrator
Cap21_NKF profile image
Cap21_NKFPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.