New to community

[cahow218]

Hi my name is Cassandra I have been on PD for 5 years It was tough when i first started in 2018. I had just lost my son 3 months prior and i was still grieving, Then to be told you would have to start dyalysis or you would eventually die was mind blowing, at that time in my life I didnt know if I wanted to live or die without my youngest son. But I choose to live as long as i can for my other children and grandchild. By joining this community I hope to learn about others who are experiencing some of the same issues as myself.

[RhenDutchess123]

Hello....I have been on PD for 2 years...I have never lost a Child, and I cannot imagine your greif...but I am so very proud of you for choosing life...your Children and Grandchildren are blessed to have you in their life...you are a Good Soldier

[cahow218 in reply to RhenDutchess123]

Thanks 4 the words of encouragement, PD has been a up and down struggle but I have learned to deal with it, I am so glad I have found others who are going through the same experience as I am.

[drmind]

So sorry for your loss. It's extremely difficult to comprehend going through what you've been through. Bless you for your courage. I'm hoping you find some comfort in this community..

[Melirm]

Hi there and welcome to the community! I am desperately sorry to hear of your loss.

PD can be a blessing and a curse! I was on PD for 3 years before I finally had to change to HD as my catheter just refused to work, no matter what.

I have now been lucky enough to recently have a transplant (10weeks post op). What has been just life changing.

There are plenty of people here to help assist, just sympathise or celebrate those ups and downs with you! Take care xx

[cahow218 in reply to Melirm]

Thank you for your words of encouragement, all I ever been on is Pd, i dont even have a fistula, just in case my catheter stops working, but i pray to G0dit nevers give me a problem. I am trying to get on the transplant list, but the social worker is telling me I need to lose 10 Lbs

[lovemesomeflowers]

I am so sorry for your loss I can't imagine the pain you have been thru.You are very brave & blessed to have family .Take good care of yourself & you will be stronger in the future.

[Beachgirl32]

welcome Cassandra I’m sorry for your lost that you had to go through that pain. I know how hard it is to have to start pd but losing a child too must of been super hard . I watch my mom start pd the day her catheter was in my dad passed so I seen how hard that was so give yourself credit for being strong cause it takes a strong person to handle what you went through .

I’m sure you will be a great help to this community to help us with questions we may need I just started my pd journey so I had lots of questions and I’m sure you will find here great support and help with questions you may have. Welcome 🫂❤️

[cahow218 in reply to Beachgirl32]

Thank you for the welcome, I still have unanswered questions about kidney disease ,even though I have been dializing for going on 5 years. I am happy to finally join a community with people who have the same or similiar concerns as mine

[Oceanviewed]

Welcome to our group. We all support each other here and I have found it very helpful. I have some sense of what you are going through with the loss of your son as my grandson died 4 years ago at age 23. I still miss him every day. Our children and grandchildren should not die before us. But we have to go on and live our life. It is what they would want for us .

[cahow218 in reply to Oceanviewed]

It will be 5 year on March31, my son was killed in a car accident. That same year in June, i had to be put on Dyalysis everything went so fast, and all i could do was keep up i felt so lost. But It wil be five years for me and all I can do each day is remain positive and live my life .

[RonZone]

Very happy that you joined our community. Your will find wonderful knowledgeable people here who have been through a lot, as you have. Take heart in knowing we all "get it". Ask anything. We can't give medical advice, but we can sure give you our thoughts! Some of those thoughts might cause you to think of something for yourself you've not thought of before. They sure have for me. And you will be able to offer something from your experience with others here as well, I'm sure of that.

[NurseRed]

Hang in there...you sound like a very strong lady i did pd for 2 years now on hemo due to extreme case peritonitis and had to have catheter removed.i myself wanted to give up but my children motivated me to be here for them.welcome