Hi all, so I started my pd training last week im doing manual exchanges, and had Thursday where my nurse left fluid to dwell over night. The drain pain is excruciating and the filling made me feel very bloated. I've not got much fluid put in. I'd had my covid jab aswell Thursday morning so that may be a factor but she decided to leave me dry for the weekend to let me get over the covid jab. But omg, the bloatedness I'm feeling and the pelvic pain, which I think is the tube ( which apparently means they know its in the right place) is horrible. All I've wanted to do is lie down and even when I'm warm I get this like tidal wave of chills that runs through my body. I've got my final training tomorrow, but I'm so scared if this is the pain I'm always going to get. Does anyone else have this? Is it just til I get used to it ? Is the tube too long? Any suggestions gratefully received.
Pelvic pain!!: Hi all, so I started my pd... - Kidney Disease
Pelvic pain!!
I have never done PD but absolutely I have heard people complain about “drain pain.”
1. If it’s really bad, they might need to operate again and move the catheter. But so many complain about it, it’s probably “normal” and that won’t fix it. I think some nurses etc overdo it at the start. My friend started PD, first few treatments at the center went fine, then one really really hurt, but the ones after that weren’t so bad.
2. IF the pain is truly truly terrible to the point it gives you chills, you need to talk to your nephrologist or surgeon to have this checked out. You may need them to re-position it.
3. I hear the position you are in matters as far as pain. I.e if you are lying down vs sitting. Please ask.
4. Yes people feel bloated and you can also gain weight from doing PD since the dialysate has glucose in it.
I'm so very sorry you're having pain! It's truly not normal. If that happens regularly, I sense that your catheter may need to be realigned; it's possibly touching on sensitive areas (such as the membrane) inside. Repositioning a cath can be done manually in most instances. My husband was on PD and never had painful episodes. Fate stepped in just in time. He stumbled across the PD nurse at his dialysis center who, out of a list of 10 surgeons or so, tapped on the one who had the best track record for placing catheters well. (She was direct - told him to wait as long as necessary to see him.) Most surgeons placing those caths really aren't kidney specialists - they just put them in without getting much, if any, feedback. So keep the possibility of repositioning your cath in mind. If you move to a cycler, make sure the cycler is on the tidal setting - it's less harsh. Protecting your membrane for longevity is important to keep in mind. In the meantime, yes...you can do a dance or make other moves to reduce it. Interestingly, while the solutions have various levels of glucose in them (one doesn't), my husband managed to reduce weight and get off all diabetes meds. The glucose shouldn't be a concern nor give you pain. However, the volume can make one feel a bit bloated but it truly shouldn't result in pain.
Hi, thanks for you reply, yes I'm using extraneal fluid, so I shouldn't put weight on. We reduced the amount when I tried today, and the drain pain although uncomfortable I controlled by slowing the outflow, even stopping and restarting. Let's hope it all just gets easier.
I have been doing PD for almost 4 years, but I remember training and drain pain..My PD Nurse had me leave a small amount of fluid to help "cushion"....it does get better and I very seldom have any drain pain but I have also learned to really be attentive to getting constipated , even slightly constipated can really cause a drain pain problem as the fluid gets trapped in your digestive track and your cathather ends up trying to suck the fluid back and "pinches" you ...especially if you start using the Cycler
Hi, thanks for your advice, it is getting less uncomfortable. I notice it as it obviously gets right to the end , and yes I recently had to use a 10 senna and citramag medication for a good clear out as I was getting backed up and blocked which really is painful. 🤞 it's helped.
Hi! When I was first doing hemodialysis, you could see the catheter through my stomach and I swore it was too long or not in the right place. My dialysis nurse even said she hadn’t seen that before 🙄. But I eventually just got used to it. I was on hemodialysis for 4 plus years. Lots of up and downs but eventually you get used to it all. Good luck to you!!
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