First post, should I be worried?: Hi, My... - Kidney Disease

Kidney Disease

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First post, should I be worried?

Owlie profile image
15 Replies

Hi,

My Efgr is 60, creatinine 86 (labs say normal up to 84), I’m in the UK and I’m 57. Microscopic blood in urine. GP said all fine.

However, I am more aware than most of the efgr due to a family member having advanced stage CKD, mine is very low, I keep challenging GP and they say I’m fine, but looking at the efgr Tables to age, I’m not.

Should I be worried or not? Im a worrier and it’s stressing me out. I drink lots of water.

Can anyone offer any advice on this?

Thank you

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Owlie profile image
Owlie
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15 Replies
S_dillow profile image
S_dillow

if it was me i would bug the heck out of the doctors.i know its different here in the usa but you need to be proactive when it comes to your health.they wont do it for you.

bumblebee_tuna profile image
bumblebee_tuna

Are you worried about genetics or something else damaging your kidneys? It's a bit low for your age yes, but not necessarily a huge concern if you are healthy and don't have proteinuria. You could do a genetic test if worried about a genetic component, and can also adjust your diet so it's more kidney friendly.

Bingo88 profile image
Bingo88

Good morning Owlie. There's a brilliant Facebook group run by Andrea where you will get more help and information. Chronic kidney disease uk. Hope this helps. Brian

Owlie profile image
Owlie in reply toBingo88

Hi, thank you for your reply, I don’t have any other issues, just had loads of blood tests because I don’t have much energy and get tired, but could be menopause. Nothing else flagged up whatsoever, it’s just I know the numbers are low and didn’t think they should be. I’m adopted and never thought about the genetics thing, to be honest. Thank you for taking the time to reply and the link!

WYOAnne profile image
WYOAnneNKF Ambassador in reply toOwlie

OK, so your doctor said all was OK. I would tell him you are concerned and see if he will order your labs to be done again in 2 weeks. I know when mine turn out a little off, my nephrologist will repeat them in 2 weeks. Always better to do that then be sorry later.

nonna70 profile image
nonna70

I too have family history although not exactly genetic. Continue to watch, learn about kidney friendly diet etc.

Bassetmommer profile image
BassetmommerNKF Ambassador

Two things are not something that should be ignored, lower GFR for you age and blood in urine. What the above people have said is all good advice. Mine is, I would find another doctor. The fact that you have two indicators and they are dismissing it is worrisome. Old school doctors did nothing for patients in the day unless they were stage 4. That was because there wasn't much to do. But now, there are several protective drugs out there that can and do slow CKD progression. Find a nephrologist who is up to date on the newer medications. Also, find a dietician to help you plan meals based on protecting the kidneys. Do not settle for "oh, it's OK."

shortmat profile image
shortmat in reply toBassetmommer

In the UK you can't "just find another doctor" unless you can pay for private medical care. Nor do you get to see a dietitian or a nephrologist until you get to stage 4.

Bassetmommer profile image
BassetmommerNKF Ambassador in reply toshortmat

And it will remain that way unless patients start demanding better. That is what advocacy can do.

shortmat profile image
shortmat in reply toBassetmommer

Advocacy does not influence the National Health Service.

Owlie profile image
Owlie in reply toBassetmommer

Thank you very much, The blood in the urine isn’t visible but my home test keeps picking it up. I also realised they didn’t do the HBA1c test for diabetes either, I spoke to another dr who again dismissed me. Having been with my relative when she saw the specialist and heard that you lose 10%? function normally a year anyway,, I am concerned.

Darlenia profile image
Darlenia

Is this your first set of labs? If so, you and your doctor will want to repeat the tests. Look at all the figures. The trend is very important and if the data comes up similar then I would look for answers. For example, blood in the urine can be a low-level uti (which can influence creatinine data) or it could be something else. If your proteinuria and albuminuria figures are out of range, that can bring up other issues, and so on. The two biggest reasons for kidney issues are diabetes and and high blood pressure. So that's something to keep in mind too. As others have noted, there is a lot that can be done to protect kidneys today. It's good to keep an eye on matters. Just make sure you don't "self-treat" yourself without professional approval. In the area of diet, you'll need regular blood draws to make sure your electrolytes stay within range.

Owlie profile image
Owlie in reply toDarlenia

Thank you, I raised it with another GP who dismissed my concerns and said they could do a blood test once a year if I was worried. Unfortunately, the doctors in general have changed from what they used to be.

Darlenia profile image
Darlenia in reply toOwlie

I'm sorry to hear that. In the US, we can order our own labs directly from labs such as Labcorp or Quest. Although we have to pay for those ourselves, the charge is reasonable. Maybe that's a possibility for you too in the UK.

Vonus5591 profile image
Vonus5591

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