Not being able to access a renal dietician; I have looked at my lab results and determined the culprits in my food (namely protein). I am recording my food intake and health symptoms in a daily journal to determine what to eat. Not all foods have nutrition labels and not CKD culprits are listed (phosphorus etc.).
The Davita Kidney Smart free course includes a Lab Tracker Sheet. Had to modify for Canadian Measurements. All CKD indicators in one place; easy to analyze.
By monitoring my lab results and analyzing my food journal I hope to determine what to eat and how much.
Written by
lakeheadguy
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Please remember that a diagnosis is not made from an annual lab results, but rather from a trend over time. It is also from a combination of blood and urine test results over many months. Bad lab results one time can be caused from many things - like dehydration, a protein rich meal, strenuous exercise, lab error, etc. Be sure you have a diagnosis before proceeding with a change in diet. Once your doctor tells you that you have CKD, get the diet OK'd.
1. Cronometer is a very useful app - it has a comprehensive database and it's free. There's useful features that come with a cheap subscription - logging say protein intake over 2 months which is a useful trend to have. It's the longer trend that matters rather than daily fluctuations.
2. As you say, nutritional labels won't contain stuff on phosphorus and the like. But what would you be eating prepared foods for anyway! . If you make your own stuff from fresh ingredients and you'll track all the nutrients. Or you can make your own receipes for shop bought things and so log all nutrients. For example: I have a shop bought coleslaw, but I've made a coleslaw receipe faithfully using the shop bought's ingredients and so I now can log all nutrients, even though shop bought
3. You might do well to get some kind of steer from a dietician, even if only initially. I was, for example, too tight on salt and was told to up it and bit and why. You can get online renal dieticians (e.g. kidneyRD.com).
I'd say the first thing to do is to figure what the big hitters are and find ways of nailing a diet that works for you and one which doesnt' see you fall off a nutritional cliff.
As always, I'd point folk to Lee Hull's Stopping Kidney Disease as a good starting point for going into battle. You get to understand the scale of the fronts on which you need to fight and get a dietary steer in the process.
I also live in Canada and I am at stage 3A. It took me around 8 months to speak with a nephrologist and just got referred to a renal dietician. Prior to that I was able to be referred to a registered dietician and it was extremely helpful. The delay was also quite short.
I don't know what the exact criteria are but it may have been only possible because I was still not feeling well after the pyeloplasty. I should have a nephrectomy by the end of year.
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. If you make your own stuff from fresh ingredients and you'll track all the nutrients. Or you can make your own receipes for shop bought things and so log all nutrients. For example: I have a shop bought coleslaw, but I've made a coleslaw receipe faithfully using the shop bought's ingredients and so I now can log all nutrients, even though shop bought
Grape seed extract and Bilberry anyone using these?
My eGFR is better and creatinine is normal
Do you supposed to feel anything for CKD? And what are the symptoms?
Cheese
