Miserable w vegan: Hi I am 42 years old male... - Kidney Disease

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Miserable w vegan

RaviC
RaviC
27 Replies

Hi I am 42 years old male. My gfr is 35% but my creatinine is 580 . It has decreased from 605 in 1 week. My doctor put me on strict vegan diet that is making me miserable. Is there any low protein fish I can eat? Or any seafood. I feel awful because of the diet

Thanks

27 Replies
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Jayhawker

I shifted to a vegan diet last summer. It has definitely improved my renal panel some. (I’ve been in Stage V since January of 2017.) My data now comes in frequently with creatinine 2.8 giving me and eGFR of 17. That’s low Stage IV. So the dietary change is definitely worth it.

I do eat whole eggs and egg whites; 4 large eggs a week with additional egg whites.

So my evening meal 4 nights a week is some form of eggs. I also have egg whites for breakfast every morning. In addition to the eggs and egg whites I’ve used vegan meatless meat options in various favorite recipes. I’ve also started using nutritional yeast on my evening meal every day. It substitutes for Parmesan cheese fairly well. It has a fair amount of vegan protein per 2T. Finally, I’ve found a few recipes for tofu cubes that are baked. I find that I like these and can put them on salads to make a dinner salad with protein.

But this is definitely a major change. I’m trying to hold off dialysis as long as possible. Thus I’m committed to the vegan diet. However, I’ve had a lot of trouble finding renal friendly vegan recipes.

Jayhawker

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RaviC
RaviC
in reply to Jayhawker

Thank you for this. My doctor doesn't want me to have any protein whatsoever. It's making me weak and miserable. I'll try to look for the meat substitute. But I live in the Philippines where it's difficult to find things like this.

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lowraind
lowraind
in reply to RaviC

At the site Natural Kidney Journey they have a lot of information regarding protein in vegetables. The info might be helpful to you.

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Marvin8
Marvin8
in reply to lowraind

Yeah, but they'll kick you out of the group if you ask questions.

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orangecity41
orangecity41NKF Ambassador
in reply to Jayhawker

Thanks for sharing good information. I am not totally vegan on my CKD diet. I find recipes on Davita.com diet helper to be helpful. There are some good recipes and they tell nutritional value, so can do diet planning. Many recipes under vegetable category.

1 like
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RaviC
RaviC
in reply to orangecity41

Thanks I'll check it out. Though I feel 15 years younger being vegan but I love good food

1 like
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Beckett24
Beckett24
in reply to Jayhawker

Eating dairy (eggs included) is NOT vegan and not good for CKD.

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RhwnSutchess123

Egg Whites are fine...in fact recommended for CKD..a good source of protein that kidneys can break down.

2 likes
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llara68
llara68
in reply to Beckett24

I also eat egg and egg whites. I limit animal protein and eat more vegetable. My gfr has improved.

1 like
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Jayhawker
Jayhawker
in reply to Beckett24

Sorry, I should had said vegetarian. And I was specifically told by the renal dietician that both were not only alright but the egg whites specifically are an extremely renal friendly form of protein. And she also strongly encouraged me to eat up to 4 whole eggs a week.

So I’m following her guidance. My renal panel has improved modestly. My BUN is definitely better and quite stable.

Please accept my apology if my earlier post offended you. That was certainly not my intention.

Jayhawker

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Beckett24
Beckett24
in reply to Jayhawker

Hi, Jayhawker. Your earlier post did not offend me, so no need to apologize. I've been pretty much following the modified CKD vegan diet in Lee Hull's book, Stopping Kidney Disease with great results (since 2/1/2019), and any type of animal meat or products is a huge no-no. My eGFR went from 44 to 58 (as of 10/17/2019).

My wife, who started with a pretty good eGFR of 68 also did the Lee Hull program with me... her eGFR is now 86 (nope, I am not dyslexic) as of 11/1/2019. If she were black, it would actually be an eGFR of 100!

Our protein mostly comes from Vegan smoothies and faux Vegan meat products. We try to watch the sodium when consuming the faux meats. They taste great.

You may want to check out the Lee Hull book; available on Amazon with customer reviews.

Best of luck to you.

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Marvin8
Marvin8
in reply to Beckett24

Did he suck you into buying his Albutrix?

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Beckett24
Beckett24
in reply to Marvin8

Hi. No, I did not buy the Albutrix. We get our protein from vegan smoothies (made from vegan protein powder, naked juice fruit smoothies, vegan almond milk, and frozen berries) and faux meat vegan products. We just really have to watch the sodium for the day when eating the faux meats.

I imagine our scores would be better with Albutrix, but for both of us it would be $400 per month which is too expensive. But our test results show what healthy eating can do.

1 like
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ckdpatient

what did your doctor say about you eating so much eggs . i was told it is not good

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RaviC
RaviC
in reply to ckdpatient

He told me no eggs no meat no dairy.

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Bond-007

I tried a strictly vegan diet, but, like you, didn't quit feel right. So, I varied it a bit, having some seafood now and then or even an egg, but I always included a lot of veggies with it, or put spices on it - sort of like a compromise. I guess I am now 90 percent vegan and 10 percent fish eater. Since fish eat seaweed, I imagine, I am, in a sense getting perhaps some seaweed molecules in my diet with the fish.

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steve680

You could try tuna salad made with canned tuna. It is good for kidneys as it is low in phosphorus. Be sure to wash off the salt when you take out of the can though. Also, egg whites are a good "meat replacement" - very low in phosphorus and recommended by all nephrologists for a CKD diet.

1 like
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Beckett24
Beckett24
in reply to steve680

Tuna will overload and damage your kidneys the same way as red meat and chicken and pork and other fish.

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llara68

Ravi what about oatmeal with some fruit like apples and a little cinnamon or berries. I eat a lot of salads. Maybe you should talk with your doctor to get a little more direction on what he wants you to eat especially if you aren't feeling well.

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Jayhawker
Jayhawker
in reply to llara68

I’ve been adding liquid egg whites to my morning oatmeal to increase my protein intake. I really like the following recipe:

1/4 steal cut oatmeal

1/2 cup water

2egg whites

1/2 cup applesauce (no sugar added)

Cinnamon to taste

Mix all together.

Microwave for 3-3.5 minutes.

Stir 2-3 times during cooking.

I use quick cooking McCann’s Steel Cut Irish Oatmeal.

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llara68
llara68
in reply to Jayhawker

That looks good. Might have to try it. I usually just eat egg whites on the side with my oatmeal.

1 like
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RaviC
RaviC
in reply to llara68

Doctor said no oats as well for me. So depressing

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Bassetmommer
BassetmommerNKF Ambassador

Hi Ravi,

It takes a while for the body to acclimate to a new diet. That is why most fail in short order. But in our case, eating properly is like taking medicine. You should see if you can find a renal dietician to help you. By the way, you are not going completely without protein. Protein is in almost everything we eat including pasta and rice. So you may be limiting it for a good reason, but you still are getting some. Once you get your creatinine down, you may be able to introduce some fish..... BUT, I do not know your medical history so I am not prescribing and you should be careful with other's suggestions. See a renal dietician.

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zencat55

You shouldn't be feeling miserable on a vegan diet. It might not even be necessary to be completely vegan.

Ask your doctor to send you to a renal dietitian. Our bodies need protein - even if it is in limited amounts and a dietitian can you help you out with this.

Good luck.

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Beckett24

Hi, RaviC. All animal products, especially any kind of meat from any living creature, are awful for CKD. My wife and I get our protein from Vegan smoothies and faux meat products which sometimes taste better than the real meats. Just watch the sodium on the faux meats. Also, veggies have protein.

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Feiann

Stick with the Vegan/vegetarian diet. It gets easier. I have been doing for 3 months

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RaviC

A little good news for me, I have been getting used to vegan but added fish 2 meals a week in very small portions. Also my creatinine has gone down from 6 to 4 and I feel so much better.

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