Finally a medicine!

[Doratheexplora]

Hi people!

So I have one question for you guys with FSGS.

Have you heard about Sparsentan?

It’s a new orphan drugs that has been successfully helped to stop the protein in the urin.

The have been severely trials with patients from 8 to 75 years.

They started the trials in 2014-2016, and now on 2018 got the conclusion that this drugs works against fsgs.

So, how easy is it to get this medicine, and how much will it cost?

Anyone here more informed than me on this case?

Take care.

[daxielovinglady]

Interesting, Re; FSGS, , transplant Feb' 2020, my UK Hospital is withholding a 'new drug' until this Covid 19 'R'rate is 'safe' & 'low enough.' Will mention Sparsentan next appt.

Thank you & stay safe.