Shaking hands

[orange33]

Hi all. I have PN. And other probs, but just a thought do any body suffer from shaky hands with this condition. My Nuero doc said it’s do to the PN which has been life changing for me. Nobody has mentioned this part of the condition here.

Thankyou

[orangecity41]

I have 2 kinds of neuropathy, one PN, along with other conditions, and my hands do not work properly sometimes, but am 79 years old, which may be a big factor. Let us know what your Neurologist says.

[orange33 in reply to orangecity41]

Hi thanks for the reply. My Neurologist just said it was part of the condition which developed over time. This still didn’t really explain it but I am 73 now so I guess it could be part of age. I was quite active till this kicked in three years ago. Had all tests but it still remains a mystery to me. My worry will it get worse. I have infusions of Rituximab for it, every 6to8months. It has affected my feet as well. Take care.

[orangecity41 in reply to orange33]

Yes on aging, there are some related medical issues we never expected. I do have Chronic Kidney Disease that might effect the PN. The other neuropathy I have is Hereditary Motor Sensory which has progressed with age. I too have had to scale back my physical activities due to medical conditions. No more 1 step aerobics.

[orange33 in reply to orangecity41]

Hi orange city. I have found that GPS and R.A. docs don’t seem to have a clue about this PN condition which do tend to make me feel rather alone with this. Thanks for the reply and I wish you well take care.

[orangecity41 in reply to orange33]

Thankfully I have a good Neurologist. I agree on the GP, mine has not been helpful.

[jazzmin]

I have that and tingling in my fingers to the point that it can hurt, have not found anything that solves this problem,cheers

[orange33 in reply to jazzmin]

Hi jazzmin yes the awful feeling in hands is frustrating as it also makes me clumsy and means there are things I can no longer do(sewing etc)however I try not to let it get me down. My neurologist was very sympathetic . Take care. Thanks for reply.

[Hooha215]

My PN has moved up from legs to shoulders, elbows and difficulty using my hands keeps getting worse. No-one has provided me any guidance on this in the medical community. I refuse MORE prescriptions and weaned off most previously provided. Medical marijuana has provided me more relief and movement than anything ever prescribed.

[orange33 in reply to Hooha215]

Hi thanks for the reply. Treatment I have had hasn’t changed this condition only showing improvement within my blood. My I ask what medical marijuana is and is it available from GP or from a health shop. Take care.

[LDAutie]

Hi orange33 i know your post is quite old but I know how it feels!

I am diagnosed with severe widespread PN (I forget the specific term) but I get very severe numbness and pins and needles,and ridiculously painful hands, no way near as bad as my feet,but still,you know....bad.Sometimes I just get some of my NHS prescribed axsain capsaicin cream and rub it on my hands but I usually end up getting it in my eye so I don’t do it a lot.

If it’s in your legs and feet badly,a wheelchair is useful, it takes the weight off your limbs it has been a life saver to me I was unable to walk due to the pain and can’t be prescribed stronger opiates due to my epilepsy.

I was prescribed a wheelchair but it’s to heavyweight for me to push myself with the PN in my arms/hands so I have just ordered a quickie neon 2 active wheelchair with my own money.

[orange33 in reply to LDAutie]

Hi thank you for your reply and helpful response. Like you my feet are awful and feel like stumps of wood and jelly mixed together and at the end of the day they are really giving me pain. My shaking hands are an embarrassment when I’m trying to do some task like opening letters etc. This condition started four years ago before that I was quite active even though I had RA.I have had infusions for this I’m afraid I don’t really understand this condition or why it came in. Ido have a mobility scooter and a walker plus use of a stick I’m over 70 now so I have to accept this awful condition but realise that if you are a much younger person it must be awful to get this condition.

I hope as time goes on they may find some answers and better treatment for it. Take care and have a better year to come.