I have posted on here before but thought I might just give it another go. I have RA mixed with PN .
I have shaking or tremors in both hands the left being worse. Has anyone experienced this. My PN is very severe. And has been life changing. I’m now in my middle seventies .
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orange33
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hi orange33, I too have severe shaking in my hands and cannot eat or write with my right hand so have to eat with my left. Often the food falls from my fork if the shaking is that bad. I am trying carnivore/lion diet to see if there’s any improvement. It’s the ultimate elimination diet and I have given up my morning coffee as well. I don’t have RA but have read that people have improved/reversed this by going low carb/ no carb. I have only been on this way of eating 3 weeks and they say you won’t see any improvement before 6 months. I also have MS and osteoporosis and have seen several people say how it has changed their life. It’s not easy but you are willing to do anything to improve your lot. I also try to exercise, not easy, but I have more energy to do this now.
Hello and thank you for replying. My shaking has got worse this last year mainly in the left hand but it’s traveled to the other hand now.
Unfortunately doctors etc don’t regard PN very seriously however it has been life changing for me as I have to use a walker and a mobility scooter.
I have not heard anything about a diet but I do try to keep healthy. I’m so sorry to read that have MS that is brutal and osteoporosis I have also been diagnosed with two other conditions which I was totally unaware of..
sometimes I do see the funny side of my shaking as the food on my fork tends to end up missing my mouth and shooting across the table.
Hi, they diagnosed me with PN then prescribed amitriptyline and gabapentin. They did nothing for me so I ditched them. It usually (PN) get worse in the evenings/night, so I read a lot to try to take my mind of it as I cannot sleep whilst my arm is burning. I too have a walker and a wheelchair to use if taken out. I console myself that at least I am not on the floor feeling as if I am dying anymore and have been in hospital twice in 2022 with extremely high blood pressure 220/100+ which the doctor did not believe, but the paramedic knew from my carotid artery that stood out that it was high and gave me morphine for the pain as I had been screaming on the floor. That’s why I’m trying an elimination diet lol, even though I find it hard at times and I am sick of red meat. I cannot tell what you are going through, although similar symptoms to me we are all different and you are not alone many people have similar symptoms happening to them. Much love to you 💕
Yes i was also prescribed Amitriptyline for pain in my feet. I was a bit alarmed at the fact it could make you a little bit foggy in mind it maybe. So I didn’t take them. Strangely my feet, really play up last thing at night and I’m only too pleased to get into bed and get off them. My hands also playing up at night.
Thankfully I don’t have to worry about my blood pressure which must be an added worry for yourself. We battle on don’t we? Kindest thoughts to you.
Hello, Orange33. We do indeed have to battle on. I've got a catheter, had it for years now, too old (78) to fit a permanent one, they tell me. Like so many others, the shakes and neurotransmitters fool the brain with broken messages. Dropping, spilling, can't grab a hold off, then can't let go, Vasculitis, leg leaks, leg and ankle straps, cataracts, terrible hearing, loss of balance, tumbles, falls, duodenal ulcer, fungal lesions, memory blanks, and diabetic socks underneath the strappings. Yesterday, when the anticoagulation blood test for the Warfarin level came back, they found I've gone up from pre- to full-blown diabetes. I manage with a walker and sticks; getting a shower and shaving is a two-hour job. The costly but needed carers, Cognitive Impairment, garbled speech, and mayhaps the most annoying, lonely.
I used to walk through the tree copse near my prison... flat, I mean (Hahaha!) almost every day, now I can't even get to it.
You are spot on about the medics not showing any interest, too. I'm sure they do not believe what we are telling them sometimes.
I think many others of us are in worse condition than I am, which makes me feel guilty typing this. But it grows on you, doesn't it? I do hope you can find some ease for yourself, and I wish you all the best of luck. You sound a brave person; bless you.
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