New to this. CIDP: Just been diagnosed... - Neuropathy Support

Neuropathy Support

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New to this. CIDP

2 Replies

Just been diagnosed with CIDP. Anyone out there have it?

2 Replies
ldwilliams profile image
ldwilliams

yes i have it

there is a good facebook group - facebook.com/groups/7274004...

there site -

gaincharity.org.uk/

they have a lot of info in both and a lot of patients willing to offer their experiences etc

1inamillion profile image
1inamillion

I’ve just been diagnosed with MADSAM neuropathy which is very similar and also very rare. I’ve just started my first course of IVIg treatments this past week.

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