Hi folks. I’m not sure if I’m in the right community to post this as I’ve just joined today and am still learning. I also apologise if this is lengthy, but I’ve found myself feeling quite desperate for help and/or advice.
Back in 2018 I’d been experiencing a strange pain in my left foot (mainly in the heel) that gradually got worse and made it difficult to walk comfortably on days out. In November 2018, I had been doing some stretches on my foot for a few days which resulted in some nerve-like pains. One night in November I was comfortably watching a film when I started getting sharp pain in my foot and then a sharp pain in my head and eyes, which prompted me to try and go to bed.
Well, as the night went on, I ended up with crazy tingling in my hands and feet, constant urination, sudden onset diarrhoea, awful headache, tingling on right cheek of my face, a tremor, sudden exhaustion, a very rapid heart beat that I could hear in my ears and nausea.
I was taken to hospital and had my arms & legs examined as well as my reactions, co-ordination etc. I think I done okay but I was stiff and in pain. I was out of area at my parents hometown and the doctor couldn’t d anything for me, said I should see a neurologist and I was sent home none the wiser.
After a long night in the hospital I slept for a couple hours but boyfriend woke me up worried as I was shaking in my sleep. When I woke, I had another awful sudden flare up of all those symptoms, went very pale and this one resulted in me vomiting. He drove me straight back to London and I had an urgent appointment with my doctor who sent me straight to hospital as she was concerned about my resting heart rate of 140bpm and could clearly see I was very unwell.
I had 2 ECG’s, apparently things came back normal except for the raised heart. I was kept overnight on a drip and given multiple blood tests, all of which apparently came back normal however I have not seen the results myself. Doctor was convinced it was B12 deficiency as I am vegan but she said everything came back normal and seemed surprised by that. I was given a neurologist appointment for February 5th 2018.
After my hospital release I spent weeks bed bound exhausted, with mild but uncomfortable and unpleasant symptoms. I would have nights with frequent urination that scared me. I could barely eat. After weeks of trying to recover from whatever happened, I gradually felt better and better and found myself feeling back to normal again - I started getting out of bed at normal times, doing daily tasks, eating dinner and even going out to exercise again.
I thought that meant everything was fixed and that I’d perhaps come down with an illness until this month. About a week and a half ago, maybe 2 weeks, the tingling in my hands and feet came back. I lost my appetite. I developed ear pains, ringing in my ear, an unusual sensation on the roof of my mouth, my tongue had cracked a bit and developed some strange bumps and was constantly dry and covered in bacteria, I developed awful abdominal cramping in different places, my bowel movements changed (stools are loose, stringy, colour changes a lot, no immediate sudden diarrhoea but close), the tingling has sometimes spread up my arms and legs (the tingling in my hands and feet have actually been with me constantly this time), a feeling of pressure in my head, tingling on my head, a painful tight chest that radiates through to my back, an unusually irregular heart beat (it skips beats for ages and feels like a thump in my head) and after losing my appetite again have quickly lost weight which is unusual for me as I struggle to lose weight.
I’ve pushed through in hopes I can make it to the neurologist appointment with no problems but had another attack of my symptoms last night that worsened enough for me to feel like it was similar to the one that happened in November last year. I’m at home constantly at the moment because going out feels like too much when I have these symptoms and I also find it physically tiring. I made it through last night without any severe changes in my symptoms this morning - they feel how they’ve felt for the past couple weeks again. A burning feeling in my chest throigh to my back and the tingling are driving me crazy the most.
I just want to know if anybody has any idea what could be going on here. This has been a distressing experience and my life feels changed after that night in November. Seeing the look of helplessness on my doctors face worried me too, but I’m trying to remain hopeful that things aren’t going to be like this forever. I’ve been trying to eat fruit but the weight loss is a concern too. Had some broth last night.
Wondering how I will make it to the February appointment as at times I genuinely feel like I’m dying. This lack of control over my body, the way it feels like everything under my skin is racing/vibrating even when I’m completely relaxed... it’s so unpleasant.
Thank you to anybody who takes the time to read this & replies. Feeling quite desperate for some support.
Written by
angelina22
To view profiles and participate in discussions please or .
Good afternoon Angelina and thank you for sharing this. Our helpline team will send you a direct message this afternoon.
Best wishes,
James
Digital Communications
Brain & Spine Foundation
wow, you have described everything that i'm suffering with, no GP, Dr or Consultant has helped me, despite constantly complaining for years.......im now desperate myself and joined here today after talking with Headway......
i also have other symptoms like a rash attacking my ears, eyes, jawline, skin, brain and nervous system - which feels like herpes, shingles, stinging nettles, my face and skin gets red hot and my brain feels like its cooking in my skull........I've developed casts at the back of my ears and forehead...
im not sure if its the same illness but i thought your words were my words and you saved me from writing out my conditions!!!!!!!!!!!! wow.......thanks Angelina thought i was going mad...I pray you get help sister xx
Thank you for your response! I visited a neurologist and received a diagnosis of Functional Neurological Disorder, however truthfully I’m unsure whether or not this diagnosis is correct. My doctor hasn’t doubted the diagnosis and feels it makes sense, however I was diagnosed within 10 minutes and denied an MRI.
I’m going to be massively overhauling my life - mainly diet. It was never bad, I follow a vegan diet (all my blood-work came back great, so no deficiencies) however I’ve started doing research into the Medical Medium and want to follow his advice to see if I can gain any control over whatever this crappy illness is. I feel that waiting for a second opinion or even a new diagnosis will involve me sitting around for too long and I simply can’t just trust the doctors to give me the answers I’m hoping for - I’m trying to take things into my own hands.
Obviously if I have any great benefits I will report back. Maybe nothing at all will change. Maybe things will get worse. I don’t know. But I’m willing to try anything to better myself, my health and my life. I hope you find some peace and healing in your life too, friend. Much love.
Hi Angela, thanks for your reply.....and i wish you well and send my strength for you too continue in good health.......without going into conspiracy theories too much, i started to research into silent weapons, like 5g, wifi, cell towers, harp, darpa, as so many people are getting ill without any reason - the results where overwhelming. i think theres a website called stopthecrime.org or .com that covers the mass illnesses developing all over the country from silent weapons-but thats not what i want to say. try detoxing from all toxins in your body, removing metals from your body, im trying to do this myself but its an upward struggle, thanks for letting me know your outcome, everything helps, so thanks.....and keep trying to get the answers you need, im now at the stage where i want to leave this country and seek medical asylum somewhere else in the world-as dramatic as that sounds, i feel the GP's/DR's/Specialists' are taking massive payouts to keep us sick, to keep us undiagnosed and to kill us off.....Agenda21 and the depopulation of humanity........because all that training and they still can't treat their patients - your patient will always tell you what the problem is, but they ignore it, so this is deliberate i believe!!!!!!!!! DISCLAIMER..... (im NOT fear mongering-this is simply my opinion and experience) lots of love and take care x
Don’t worry I completely know/understand everything you’ve just mentioned, I’m currently following Medical Mediums protocol to detox from heavy metals, stopped using fluoridated water a long time ago and toothpaste etc, but obviously it’s hard to avoid everything in the food, pills, environment etc so detoxing hard. I’m going to be doing a weeks fast next week maybe longer, went vegan a long time ago but now trying fully plant based whole food diet for detoxing. I just feel that it’s worth giving anything a go. Definitely don’t think you’re a conspiracy nut - you’re right that the evidence is truly overwhelming. Even just the way the cell phone towers are effecting people who live near them. I’m having crazy head tingling lately, like strong fluttering inside my head and it’s so frightening. I keep my phone on flight mode at night now and far away from where I sleep. Much love.
wow, i went yesterday to the hearing centre about fluttering and she said, nothing can be done, her reply was....."theres many things in life that cannot be explained" I showed her respect and left......... do not have the phone in your room, get an alarm clock battery powered and keep all wifi off, use a cable to connect to your router. when you go to bed-leave the phone in the other room or even better switch it off and leave it in another room, remove all devices from your bedroom including any radios or tvs......... bless you angelina22 - onwards and upwards!!!!!!!!!!! stopthecrime.org or .com or.net i.ve been watching what this geordie guy has been doing and saying but been looking into this for years due to symptoms that i could not understand!!!!!!!!!!!! DISCLAIMER....im not trying to fear monger people - we have enough to deal with right!!!!!!!!!!! this is simply my opinion and experience and i send only Love and care to everyone xxxx
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
