If you use facebook you may be interested in Myositis Forum UK, it's a UK & Ireland only closed group (so you have to be a member to view/comment on posts) with over 800 members.
If you request to join you must answer the 3 required questions before your approved to join.
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Necrotising Myositis and leg pain
'POSSIBLY' MYOSITIS - OR NOT?
Inclusion Body Myositis
New looking for advice pls 
