If you use facebook you may be interested in Myositis Forum UK, it's a UK & Ireland only closed group (so you have to be a member to view/comment on posts) with over 800 members.
If you request to join you must answer the 3 required questions before your approved to join.
Myositis Diagnosis Problems 
Anyone have Drug-induced Myositis?
Inclusion Body Myositis
Necrotising Myositis and leg pain
Inclusion myositis conclusion 
