If you use facebook you may be interested in Myositis Forum UK, it's a UK & Ireland only closed group (so you have to be a member to view/comment on posts) with over 800 members.
If you request to join you must answer the 3 required questions before your approved to join.
Looking for Myositis specialist
New looking for advice pls 
Hello to every sufferer fighting his/her way back to a kind of normality
Still Nothing Happening
How do you get a firm Mysiotis diagnosis? What scans will show affects on muscles? 
