Myositis clinic in South East

[Jan22]

I am new here and was initially diagnosed with D M three years ago. My diagnosis after lots of tests is now A N C A Vasculitis with Myositis overlap. I have only been given prednisolone and Retuximab infusions 6 monthly.The Myositis is now affecting both arms and to some extent my thighs so limits what I can do. I live in East Sussex and wondered if there was a Myositis specailist in my area. Thanks in anticipation Jan 22

[Jo-Goode Administrator]

London Kings College - Dr Patrick Gordon

Chairman of the UK Myonet group (the research/advocacy group of doctors and researchers in the UK). Dr Gordon is a Myositis UK adviser Specialises in Dermatomyositis, Polymyositis, adult JDM, also holds joint Myositis/lung clinic for ASS at Guys Hospital. For NHS referral request via GP. Info on Dr Gordon & private referral/one off private appointment link:

kingsprivate.com/…/rheumato...

[Jan22 in reply to Jo-Goode]

thank you for the comprehensive information given in your reply, much appreciated. Best wishes Jan

[VikiHurst]

My mum is under the rheumatologist consultant at Princess Royal in Hayward’s Heath. She was diagnosed in Dec 17 and has been making good progress since x

[Jan22]

Thank you for your reply could you please let me know the consultants name . Best wishes Jan