Myositis clinic in South East: I am new here... - Myositis UK

Myositis UK

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Myositis clinic in South East

Jan22 profile image
4 Replies

I am new here and was initially diagnosed with D M three years ago. My diagnosis after lots of tests is now A N C A Vasculitis with Myositis overlap. I have only been given prednisolone and Retuximab infusions 6 monthly.The Myositis is now affecting both arms and to some extent my thighs so limits what I can do. I live in East Sussex and wondered if there was a Myositis specailist in my area. Thanks in anticipation Jan 22

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Jan22
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Jo-Goode profile image
Jo-GoodeAdministrator

London Kings College - Dr Patrick Gordon

Chairman of the UK Myonet group (the research/advocacy group of doctors and researchers in the UK). Dr Gordon is a Myositis UK adviser Specialises in Dermatomyositis, Polymyositis, adult JDM, also holds joint Myositis/lung clinic for ASS at Guys Hospital. For NHS referral request via GP. Info on Dr Gordon & private referral/one off private appointment link:

kingsprivate.com/…/rheumato...

Jan22 profile image
Jan22 in reply to Jo-Goode

thank you for the comprehensive information given in your reply, much appreciated. Best wishes Jan

VikiHurst profile image
VikiHurst

My mum is under the rheumatologist consultant at Princess Royal in Hayward’s Heath. She was diagnosed in Dec 17 and has been making good progress since x

Jan22 profile image
Jan22

Thank you for your reply could you please let me know the consultants name . Best wishes Jan

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