thank you everyone who responded to my post. I wish I could call my neurologist but I have to go to VA for care and calling anyone is impossible. By the time someone does reach you back it’s at least 3+ weeks or more so my only option is to go to ER an/or just wait til my next infusion. If I could ever see my neurologist again it would be a miracle. I seen her once when I was diagnosed and once when I was setting up my medication to try and I have never been able to see her again. I would love to be able to see the same Doctor every time but that’s never happened. My OB/GYN is always same but that’s only time.
OCrevus : thank you everyone who responded... - My MSAA Community
OCrevus
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Scooterboo1973
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I'm so sorry to hear that you can't contact a neurologist. Maybe going to the ER isn't such a bad idea, even though the wait is terrible. They would probably do MRIs to see if you have any activity going on there. It's terrible that the VA can't take better care of you. I hope you're able to get care at the E/R, should you decide to go.
Prayers for you, Scooterboo. The VA should help you more. I am about to ditch my neuro too. She has done zip to help me for 3 years now. But we owe it to our veterans to do more. I am sorry.
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