Hi my MS family 🙂: I had an intrathechal... - My MSAA Community

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Hi my MS family 🙂

Sweetheartonvdayl profile image
10 Replies

I had an intrathechal pain pump placed on 5-2 & didn’t have it turned on until 5-9. Then I needed an increase on 5-14. It’s not working, so I’m asking for another in 2-4 weeks. They really worry about their own butts, then to care of the patient suffering.

BTW- a little of my background, so to speak. I’ve been living in chronic pain since my early 20’s , or that’s when I felt it. I was born w/scoliosis-curvature off to the right.

This is what I’ve Waiting for 🎉🎉🎉

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Sweetheartonvdayl profile image
Sweetheartonvdayl
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10 Replies
CatsandCars profile image
CatsandCars

Wow, it sound like they're going so slow! I'm so sorry that you have been in pain so long, that you finally have the pump, and they're taking their sweet time getting you up to an effective dosage. That really stinks. I hope that you make a pain in the behind of yourself until they take care of you. They should be more responsive to you. Sending hugs! ❤️

Sweetheartonvdayl profile image
Sweetheartonvdayl in reply toCatsandCars

They don’t want me to get tolerant of the drug… if it’s 30-50 percent better then they got the right dose,but it’s Not-so DO Something!!!

🤗❤️

CatsandCars profile image
CatsandCars in reply toSweetheartonvdayl

No kidding! I hope they help you soon!

Sweetheartonvdayl profile image
Sweetheartonvdayl in reply toCatsandCars

Thank you ❤️

Mollyabigail profile image
Mollyabigail

I am not familiar with a intrathechal pain pump. But it sounds like you are being your own advocate. Get 'em! I hope you get results soon.

Sweetheartonvdayl profile image
Sweetheartonvdayl in reply toMollyabigail

Hi Mollyabigail🙂

An intrathecal pain pump delivery system, delivers a certain drug into your spinal cord over a 24 hour period. Mine happens to be morphine.

Thanks for your question & support.

🙏🏻❤️Lisa 💕

CatsandCars profile image
CatsandCars in reply toSweetheartonvdayl

Sweetheartonvdayl, it technically goes into the space around your spinal cord, which contains your spinal fluid. Although it's hard to tell the difference when you're getting the test injection! 😊

Sweetheartonvdayl profile image
Sweetheartonvdayl in reply toCatsandCars

You are technically right! 👍

CatsandCars profile image
CatsandCars

How have you been doing lately? How has the pain pump worked out for you?

Sweetheartonvdayl profile image
Sweetheartonvdayl

Hi CatsandCars 🙂!

Thanks for asking 🤗, I’ve got a new “lease” on life-I can now walk, exercise w/o pain and live a little.

Definitely a game changer!!!

🙏🏻❤️Lisa 💕

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