Tysarbi: Has anyone been on the tysarbi or... - My MSAA Community

My MSAA Community

9,211 members20,958 posts

Tysarbi

4 Replies

Has anyone been on the tysarbi or is currently getting the treatments? Looking to see how everyone usually feels the day of and after?

4 Replies
Kenu profile image
Kenu

Was on Tysabri for seven years and loved it. The only side effects was fatigue for couple days and back to so called normal 👍. I had to change when I got cancer ♋️ because of white cell count or would still be on it. I was working full time so I received it on Friday afternoon and gave me weekend to regroup 👍. Good luck and hope things go well 🙏😉🤗 Ken 🐾🐾

MsBoo profile image
MsBoo

I was on the "Test Group" for Tysabri, and like Kenu, had no problems but tiredness after infusion.. only one day for me. I was on it for over 10 years. I loved it..

Amore55 profile image
Amore55

I was on Tysabri for six years and loved it. It really helped me. But I was JC positive and my number became too high to continue on it. I wish I could have continued on it, had my count not become too high. Let us know!

JTZES profile image
JTZES

I'm JVC positive so my nuerologist would never put me on it. As far as DMT's go it is the best. It has a 99% effectiveness rate.I haven't researched the latest meds that have come out to see what their percentages are. I'm on Ocrevus and it is working well for me.

I'd give it a try and see how it goes.

Good luck 🤞.

Not what you're looking for?